Posts Tagged ‘SC News and Research’
Pre-Registration for LiveStream
Click here to register and watch the sickle cell disease therapeutics conference. Watch live here on Tuesday; sickle cell disease awareness month is for warriors, it’s our time to shine!
Read MoreEmergency Care not Ideal for SC Patients
New survey finds that treatment in the emergency room for patients with sickle cell disease is not ideal. This is a longstanding issue, but warriors now demand justice. It will be addressed by #BlackHealthMatters initiative
Read MoreSCWs COVID Highs and Lows
COVID Pandemic Lesson: Learn to Flow Like Water Once the COVID Pandemic and shutdown hit California, it quickly became apparent that traveling to events was going to be off the table for a while. Sickle Cell Warriors, Inc. and other sister organizations in the advocacy sphere, we all had to move quickly, as information and…
Read MoreUpdated Pandemic Response
A high-level summary of the efforts of Sickle Cell Warriors during the COVID pandemic and shutdown.
Read MoreAddressing Sickle Cell Disease
Blueprint for Action – Report Release Webinar Addressing Sickle Cell Disease through a Strategic Plan How are we addressing sickle cell disease? On September 10, 2020, from 2:00 PM to 3:00 PM ET, join the National Academies of Sciences, Engineering, and Medicine for a webinar. They are releasing a new report on SCD in the…
Read MoreMental Health Initiative for Sickle Cell Warriors, Inc.
Register here for the new Mental Health Initiative, a free benefit provided by the Sickle Cell Warriors, Inc., community. The program details are below. This program is for warriors, by warriors, to warriors and funded with donations from the SCW community.
Read MoreGBT Livestream Registration
Preregister for the Sickle Cell Disease Therapeutics Conference right here. Watch the livestream here on the Sickle Cell Warriors website.
Read More(un)Summit: A RARE Patient Advocacy
Global Genes LIVE! Get ready for an (un)Summit! Find a variety of engaging and educational online events, meet-ups, workshops and performances. (un)Summit: September 15-25, 2020 A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community and allies with ways to connect and engage with each other through interactive activities…
Read MoreA New SC Blog – Check it out!
Micromattie.com is launching a blog focused on recent developments and best practices in healthcare for Sickle Cell patients. Check it out!
Read MoreCOVID Sickle Cell Warriors Impact Study
To best serve you during this trying year, Sickle Cell Warriors, Inc. has developed a short study. Data received will be used to guide program development and education. This falls under our mission objectives of Research, Advocacy & Education.
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