I got this from Our Voice, a new sickle cell blog that just launched in the blogosphere. Go over there and say hi! According to the Washington Post, May 29,2008, Johns Hopkins Instituteresearchers developed a human stem cell line containing the mutation associatedwith sickle cell anemia. They say, “One challenge to studying blood diseases like
Sickle Cell Clinical Trials Read More »
My, my, my that was a hot topic. I didn’t even know that many people read the blog. I would like to thank Anon RN and Anon Parent for stepping up to the plate and bringing this up. Personally I hate it when people assume that just because we are on narcs we must be
Re: Sickle Cell Drug Addicts Read More »
Today is my 2nd day of being on Nicosan. One of my readers believes so much in this medication that he ordered and shipped it to me! Thank you for that…now let’s get this guinea pig in motion. So far, I haven’t had any side effects, no sickle cell pain but I haven’t really noticed
This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that cold weather seems to trigger
People with the Trait Have Pain Too! Read More »
Now my doctors are trying to get my on Hydroxyurea like hardcore. I’m still scared about it. I know some people have used it with lots of great results, but those side effects are no joke—AND NOT BEING ABLE TO HAVE CHILDREN?? That is some crazy shit. Well, the main thing is that if you
Hydroxyurea & Infertility Read More »
Someone left this information in a comment and I just wanted some feedback. There is a relatively new treatment for sickle cell being produced in Nigeria by an American company called Nicosan. It is based on traditional Nigerian plant based medicinal practices for the treatment of sickle cell disease. It has been tested through phase
Another Miracle Drug: Nicosan Read More »
Whoa, check this out…guess we aren’t as alone as I originally thought. Seriously though…a VIRUS?? It sounds waaaaay X-men-ish for me but at the same time, it just might work.
New Sickle Cell Research Findings Read More »
Norion’s dad sent me a forward a few weeks ago about L-Arginine that he had gotten from a fellow scientist researching the benefits of L-Arginine and nitric oxide to cardiovascular conditions. In addition, someone had left a comment on a previous post about L-Arginine weeks ago that was around the same time. Serendipity was pointing
The Wonder of Nitric Oxide Read More »
One of my friends sent this PSA to me about Sickle Cell. I wanna know why my fine face wasn’t there…lol.
The New Sickle Cell PSA Read More »
I recently got this in my Myspace box and I’m passing it on to all the Sickle Cell Warriors out there. We are asking everyone to help raise public awareness of this deadly genetic disorder. PLEASE put SICKLE CELL, You Have No Idea! in your top friends. http://www.myspace.com/sicklecellawareness1 While sickle cell is often thought of
September is Sickle Cell Awareness Month Read More »
