Advocacy and Activism

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Hydroxyurea Linked to Fewer Crises in Guinea: What a 102-Patient Study Shows

By Tosin Ola, RN, BSN, MBA-HCM, Founder & President, Sickle Cell Warriors Foundation. A study from Conakry, Guinea, has found hydroxyurea linked to fewer sickle cell crises — welcome evidence from a region where sickle cell disease affects so many families, and where access to treatment is often limited. The study followed 102 patients and

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The Sickle Cell Community Consortium in collaboration with Sickle Cell Warriors is hosting Warrior Con 2026, happening July 22 to 26, 2026, at the Sheraton Gateway Los Angeles Hotel.

The Sickle Cell Community Consortium is hosting Warrior Con 2026, happening July 22 to 26, 2026, at the Sheraton Gateway Los Angeles Hotel. Get ready for a powerful week of community, education, advocacy, wellness, family connection, research conversations, and real support for the sickle cell community.This year’s theme, Legacy in Action: The Next Move, is

The Sickle Cell Community Consortium in collaboration with Sickle Cell Warriors is hosting Warrior Con 2026, happening July 22 to 26, 2026, at the Sheraton Gateway Los Angeles Hotel. Read More »

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Black History Month Midwives 2022

Did You Know: Black Midwives Most midwives, including enslaved women, drew upon traditional healing knowledge and practices passed down through generations. Throughout the years, despite efforts to marginalize them by the medical establishment, Black midwives have continued to play a critical role in delivering babies and training the next generation of Black birthworkers. This #BlackHistoryMonth

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Public Meeting: FDA Rare Disease Day 2022

FDA will host a virtual public meeting on March 4, 2022, 9:00 am to 4:30 pm EST, to join the global observance of Rare Disease Day. The theme for FDA’s Rare Disease Day is “Sharing Experiences in Rare Diseases Together.” During the meeting, various stakeholders will share their perspectives on and experiences in rare disease product development. Please visit the public meeting page to register for the event. If you are a

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Black History Month Mothers & Children 2022

The Impact of Institutional Racism on Maternal and Child Health Understanding the history associated with the persistent health disparities impacting the Black community is a vital step toward dismantling policies and practices that continue to adversely affect Black maternal and child health outcomes. Institutional racism—racism that began with the enslavement of Black people—was embedded in

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