SC Warrior

Let’s Talk About Self-Care: Living Well with Sickle Cell — with Tanya Gentry

Leave a Comment / Living with Sickle Cell, SC News and Research, Videos /

Self-care isn’t selfish — it’s survival. Join me and Tanya Gentry for ‘Let’s Talk About Self-Care: Living Well with Sickle Cell,’ presented by Building Bridges Sickle Cell Disease Foundation. Tuesday, October 13 · 5 PM PSTVia Zoom, streaming on Facebook LiveSponsored by Pfizer Come as you are. Leave with something new. What’s ONE self-care habit

Let’s Talk About Self-Care: Living Well with Sickle Cell — with Tanya Gentry Read More »

Close-up of a scientist's hands in gloves analyzing a blood sample in a laboratory setting.

Mitapivat Decision Due November 1: A Pill, Not a Cure — But a Step Forward

Leave a Comment / SC News and Research /

By Tosin Ola, RN, BSN, MBA-HCM, Founder & President, Sickle Cell Warriors Foundation. The U.S. Food and Drug Administration’s decision on mitapivat, a pill for sickle cell disease, is due November 1, 2026. Mitapivat is not a cure. In Phase 3 trials, however, it raised hemoglobin levels — and for people living crisis to crisis,

Mitapivat Decision Due November 1: A Pill, Not a Cure — But a Step Forward Read More »

A neatly arranged blister pack containing pink tablets on a solid purple surface.

Hydroxyurea Linked to Fewer Crises in Guinea: What a 102-Patient Study Shows

Leave a Comment / Advocacy and Activism, SC News and Research /

By Tosin Ola, RN, BSN, MBA-HCM, Founder & President, Sickle Cell Warriors Foundation. A study from Conakry, Guinea, has found hydroxyurea linked to fewer sickle cell crises — welcome evidence from a region where sickle cell disease affects so many families, and where access to treatment is often limited. The study followed 102 patients and

Hydroxyurea Linked to Fewer Crises in Guinea: What a 102-Patient Study Shows Read More »

A female scientist conducting research in a well-equipped laboratory, focusing on chemical analysis.

A First in the UK: A Patient Completes Gene-Editing Therapy for Sickle Cell Disease

Leave a Comment / SC News and Research /

By Tosin Ola, RN, BSN, MBA-HCM, Founder & President, Sickle Cell Warriors Foundation. Aisha has become the first patient in the United Kingdom to complete gene-editing therapy for sickle cell disease — and is now living without sickle cell crises. This milestone, reported by Manchester University NHS Foundation Trust, matters far beyond one hospital. For

A First in the UK: A Patient Completes Gene-Editing Therapy for Sickle Cell Disease Read More »

Donate
Donate
Shopping Cart
Scroll to Top
Secret Link