Declaring Solidarity and Welcoming All

Sickle Cell Warriors!

We are the largest patient-run sickle cell disease advocacy nonprofit in the world, with over 25,000 members (and growing)

Patient-Focused Nonprofit Generating Awareness About Sickle Cell Disease, a genetic disorder that primarily affects BIPOC minorities

Welcome to Sickle Cell Warriors™, Inc.


We Made It!


September Is Sickle Cell Disease Awareness Month!

Our Time to Shine!

World Sickle Cell Day on June 19th

Sickle Cell Awareness Month

Don’t call me a sickler, I am a warrior!

~Get Latest News About Sickle Cell Disease Curated by Sickle Cell Warriors™ for You & Your Warrior Family~

Sickle Cell Warriors Inc

ASGCT Advocacy Update

Newborn Screening Advocacy Succeeds in Georgia Earlier this month, Georgia Governor Brian Kemp signed HB 567 [ ] into law, which will require the state to consider new federal newborn screening (NBS) recommendations within one year, implement them within two and a half years, and provide appropriate funding for the NBS program. ASGCT supported the bill…

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Sickle Cell Warriors Inc

New data for Vertex and CRISPR Therapeutics

Vertex and CRISPR Therapeutics Present New Data in 22 Patients With Greater Than 3 Months Follow-Up Post-Treatment With Investigational CRISPR/Cas9 Gene-Editing Therapy, CTX001™ at European Hematology Association Annual Meeting – Beta thalassemia: All 15 patients were transfusion independent after CTX001 infusion – – Sickle cell disease: All seven patients were free of vaso-occlusive crises after…

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Sickle Cell Warriors Inc

Passing on Sickle Cell to your Children

Passing on Sickle Cell to your Children Warrior parents, can you relate to feeling like this? How do you cope? What helps you get through these feelings about passing on sickle cell? Jourdan Dunn feels as if she passed sickle cell disease on to her son, Riley Dunn. The model-turned-actress recently told The Sunday Times magazine about…

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We are the innovators of the term Sickle Cell Warrior© a word that has been adopted by patients all over the globe.

Our Mission

Our mission is to provide education, awareness, empowerment, advocacy, research access & support for those living with sickle cell disease. We do this through digital media, events, and conferences. We help to amplify the voices of patients, caregivers, and families battling this genetic rare disease.

Share Your Story

First of all, if sickle cell has touched your life in any way, you are a warrior. Are you a sickle cell warrior living life to the fullest regardless of sickle cell? Are you a mother, father, or grandparent caring for a sickle cell warrior? Are you in school, working or managing a household? Would you like the your sickle cell story featured on this website?

Written by Warriors for Warriors 

SCW has the largest peer-curated online collection of articles dealing with the personal nature of sickle cell disease. 

Join the movement to end Sickle Cell Disease.
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Want to be featured as a Warrior in the Spotlight? Share your story here and inspire others.

We work with incredible organizations around the world.

  • SCW is credentialed founded member of the Sickle Cell Community Consortium
  • Co-Founders of the Annual Sickle Cell Warriors Convention
  • Proud member of the Sickle Cell Disease Coalition

Want to collaborate?

Join Live Conversation on #SickleCellDisease

Connect with Sickle Cell Warriors online via one of our social media portals

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