DON'T MISS
Meet Ade: Software Developer, Techie, Advocate, Warrior
Ade is an exceptionally brilliant sickle cell warrior, who has learned the fine art of balance. Read more...
LIFESTYLE NEWS
SC Handbook for Parents and Caregivers
Knowledge and Confidence to Tackle SCD
Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional...
Live Big
Doctors and nurses, even our friends and family often see us as “the sickler”
Hard Global Launch September 2019
. We will have a story featured...
HOUSE DESIGN
TECH AND GADGETS
Gotta Get Goals…
Life has no limitations, except the ones you make. Life takes on meaning when you become motivated, set goals and charge after them in...
PERFORMANCE TRAINING
Genetics & Causation
If you are a carrier of the sickle cell trait, it's good to know this before you start falling in love and making babies....
SC Handbook for Parents and Caregivers
Knowledge and Confidence to Tackle SCD
Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional...
How Do You Handle Frustrating People, Why I Stopped Talking To My Mother
How do you deal with frustrating people who don't understand what we go through? April answers how she dealt with the most frustrating person in her life.e
Scholarships Available for Individuals Living With SCD
The International Association of Sickle Cell Nurses and Professional Associates (IASCNAPA) established a competitive college scholarship program to assist students with sickle cell disease...
Water is Life
Water is a very powerful thing. Cultures as old as time have worshiped it. It flows throughout all the lands, connecting the entire world,...
The Crazy Things I Say with Narcotics
On the Sickle cell Ning forum, there is a great discussion about the crazy things that Sickle Cell Warriors say while they are on...
Seizing the Day…
Hello everyone!How are you enjoying the summer? I'm doing great, having all kinds of fun in beautiful Portland. Summer is the only time that...
Crises #1 of 2008: Triggers
Okay, so I'm trying to think about everything that contributed to this last crises, so that I can do better with the 'taking care...
Livestream of FDA-ASH SCD Clinical Endpoints Workshop
Livestream of FDA-ASH SCD Clinical Endpoints Workshop
October 17-18, 2018
The FDA-ASH Sickle Cell Disease (SCD) Clinical Endpoints Workshop aims to identify opportunities to bring uniformity...
FREE Webinar: Hydroxyurea for SCD
June 25, 2019
6:00 – 7:00 p.m. Eastern time
This webinar will provide information on hydroxyurea, share a story from an individual who has taken hydroxyurea,...
MAKE IT MODERN
LATEST REVIEWS
Sweet Remedy!
If your child has had issues or trouble taking medications, this post is for you. ElleJenae gives us the sweet remedy that she learned from her mom which gets her baby girl to take her meds every single time.
HOLIDAY RECIPES
Nicosan Fan Mail
This letter just brought it home for me...all the stress that I've been going through getting Nicosan to my dear users in the US....
