DON'T MISS
Going to School with Sickle Cell
One thing that I've learned with having this ailment is that I can't let it scare me or change anything about the way I...
LIFESTYLE NEWS
SC Handbook for Parents and Caregivers
Knowledge and Confidence to Tackle SCD
Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional...
Live Big
Doctors and nurses, even our friends and family often see us as “the sickler”
Hard Global Launch September 2019
. We will have a story featured...
HOUSE DESIGN
TECH AND GADGETS
Meet Paula: Administrative Assistant, Freelance Writer, Upcoming Gospel DJ, Warrior!
Today, we are interviewing Paula Kent, a warrior with a passion to dream, and to follow her talents! Despite her dealings with sickle cell,...
PERFORMANCE TRAINING
More Sex and Sickle Cell
Here are some tips to help you have amazing sexual experiences in and out of the bedroom without triggering a sickle cell crisis afterwards...
Sickle Cell Stress and the Holidays
Sickle cell episodes are often triggered during the holidays. James explains why this happens and gives some tips on how to avoid a holiday hospitalization.
Sickle Cell Disease Handbook by APHON
Sickle Cell Disease Handbook for Patients & Families
The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The...
Staying Warm in Cold Weather with Sickle Cell
Here are a few tips for bundling up and staying warm this cold season.
New Funding Opportunity for Researchers – Deadline May 31, 2019
All researchers are invited to take on the challenge of advancing cures for sickle cell disease (SCD).
The Doris Duke Charitable Foundation is accepting applications...
Yoga for Sickle Cell Health
Yoga is great for your mind, spirit, health AND sickle cell. Read more to learn the basic principles of yoga from our resident Yogi, April.
Insomnia
For weeks now I've had a weird sleeping pattern. Generally I work late evenings from 3pm to midnight, and this is actually my dream...
Meet Kandis: Mom, Nurse and Warrior
Meet Kandis, an intrepid and determined young lady. Even with AVN and sickle cell, she has accomplished all her dreams and strives to inspire others.
Meet Heather Avant: Photographer, Dedicated Advocate, Inspiration, Warrior!
Hi, everyone, today we will be speaking with Heather Avant, a Sickle Cell advocate, who began work to raise awareness of this disease at...
Schools & Parents Can Work Together
ElleJanae explains how to work together with school administrators and the teacher to get your 504B plan instituted and executed for your child.
MAKE IT MODERN
LATEST REVIEWS
SCD Cure through Stem Cell Transplant
Exciting news!!
Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children's Hospital and his team cures a Sickle Cell Disease patient through...
HOLIDAY RECIPES
Stop Mistreatment of Sickle Cell Patients in the Emergency Room
Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain...
