ASGCT 24th Annual Meeting Associate Members: Register for the Annual Meeting for Free We, here at the ASGCT 24th annual meeting, are excited for the conference this year! We want to express our gratitude to all our members for trusting ASGCT to add value to your career. Part of our mission is to be the […]
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Sickle Cell Warrior Death Inquest Reveals Gross Negligence in Hospital This makes me so mad. Rest Pain-free Mr. Evan Smith, Your death will not be in vain, you will save many warriors, I promise. Shame on you North Middlesex Hospital. All their excuses don’t matter. This young man lost his life due to poor medical
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The Sickle Cell Disease Coalition (SCDC), is developing fact sheets on sickle cell disease (SCD) therapies for the community and would appreciate your help reviewing the draft resources. As background, the SCDC formed to amplify the voice of the SCD stakeholder community to improve outcomes for individuals with SCD and Sickle Cell Warriors, Inc. is a
Survey: Draft Fact Sheets on SCD Therapies Read More »
Click here to register and watch the sickle cell disease therapeutics conference. Watch live here on Tuesday; sickle cell disease awareness month is for warriors, it’s our time to shine!
Pre-Registration for LiveStream Read More »
New survey finds that treatment in the emergency room for patients with sickle cell disease is not ideal. This is a longstanding issue, but warriors now demand justice. It will be addressed by #BlackHealthMatters initiative
Emergency Care not Ideal for SC Patients Read More »
A Virtual Symposium Hosted by the HHS Office of Minority Health Advancing the Response to Covid-19 September 17, 2020 | 12:00 PM to 6:00 PM ET The Response to Covid-19 meeting features several things. Firstly, promising practices, programs, and strategies for combatting the pandemic in order to achieve health equity in communities of color. In
Advancing the Response to COVID-19 Read More »
Preregister for the Sickle Cell Disease Therapeutics Conference right here. Watch the livestream here on the Sickle Cell Warriors website.
GBT Livestream Registration Read More »
AMPI (Alliance to Protect Medical Innovation) created this video. It is to inform legislators of the impact that our country’s various forms of investment in rare disease research has. APMI Mission Statement More life-changing medicines are available to patients now than ever before. With new medical breakthroughs treating once-untreatable conditions and diseases is possible. Innovation
AMPI Rare Disease Video Read More »
To best serve you during this trying year, Sickle Cell Warriors, Inc. has developed a short study. Data received will be used to guide program development and education. This falls under our mission objectives of Research, Advocacy & Education.
COVID Sickle Cell Warriors Impact Study Read More »
Increasing Appointment Attendance: A Vital Opportunity to Improve Health Outcomes for Those Living with Sickle Cell Diseases August 10, 2020, 3:30 – 4:30Â p.m. ET To make health outcomes better, national rules for routine follow-up appointment every six months. More often for patients on specific drugs or having probelms. Yet, a 2019 national study showed that
NICHQ Webinar: Appointment Attendance Read More »
