Hello Sickle Cell Community Stakeholders! Get your message to a wider audience! Share news about your research, scholarship, event, gig, organization, or business! Start here! The Sickle Cell Warriors ~ League of Sponsors is looking for new partners! The League of Sponsors helps fund sickle cell-focused programs for patients and families living with sickle cell […]
Micromattie.com launched a SC blog focused on recent developments and best practices in healthcare for Sickle Cell patients. Check it out! You will find lots of information on the health care industry. There are many blogs about sickle cell. Including topics on emergency care, health challenges, and perspectives from people living with sickle cell disease.
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A Virtual Symposium Hosted by the HHS Office of Minority Health Advancing the Response to Covid-19 September 17, 2020 | 12:00 PM to 6:00 PM ET The Response to Covid-19 meeting features several things. Firstly, promising practices, programs, and strategies for combatting the pandemic in order to achieve health equity in communities of color. In
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Blueprint for Action – Report Release Webinar Addressing Sickle Cell Disease through a Strategic Plan How are we addressing sickle cell disease? On September 10, 2020, from 2:00 PM to 3:00 PM ET, join the National Academies of Sciences, Engineering, and Medicine for a webinar. They are releasing a new report on SCD in the
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Preregister for the Sickle Cell Disease Therapeutics Conference right here. Watch the livestream here on the Sickle Cell Warriors website.
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Global Genes LIVE! Get ready for an (un)Summit! Find a variety of engaging and educational online events, meet-ups, workshops and performances. (un)Summit: September 15-25, 2020 A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community and allies with ways to connect and engage with each other through interactive activities
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Ready to join us for the sickle cell disease Livestream? Join here for the sickle cell conference disease therapeutics conference sickle cell disease pre register for livestream here at sickle cell warriors
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Micromattie.com is launching a blog focused on recent developments and best practices in healthcare for Sickle Cell patients. Check it out!
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AMPI (Alliance to Protect Medical Innovation) created this video. It is to inform legislators of the impact that our country’s various forms of investment in rare disease research has. APMI Mission Statement More life-changing medicines are available to patients now than ever before. With new medical breakthroughs treating once-untreatable conditions and diseases is possible. Innovation
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