(un)Summit: A RARE Patient Advocacy

Global Genes LIVE!

Get ready for an (un)Summit! Find a variety of engaging and educational online events, meet-ups, workshops and performances. 

(un)Summit: September 15-25, 2020

A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community and allies with ways to connect and engage with each other through interactive activities paired with educational programming. 

Firstly, people will gain insights about the latest in rare disease innovations, best practices for advocating on an individual and business level, and strategic ways to spur change.

Register at https://globalgenes.org/event/live/

However you can stay connect with us on our homepage!

Here’s more about Global Genes from their website:

Global Genes’ story began with our loved ones. We are the friends, family and supporters of patients close to us who are affected by rare disease. Therefore, we know the chaos, the experience of the unknown and the feelings of isolation all too well. And we know we aren’t alone. That’s the reason Global Genes was born – to connect, empower and inspire the rare disease community.

In addition, Global Genes provides hope for the more than 400 million people affected by rare disease around the globe. We fulfill our mission by helping patients find and build communities, gain access to information and resources, connect to researchers, clinicians, industry, government, and other stakeholders, share data and experiences, stand up, stand out, and become effective advocates on their own behalf.

We see a global community ready to get rid of the challenges of rare disease.

In sum, at Global Genes, we’re guided by our values – we call them our passion. Our team unites through our determination to support the rare disease community and provide what patients and advocates need to take action and thrive.