This is not my research, therefore I do not have additional information about this project. It is being conducted by Kimberly Grace, a PhD student at Alliant International University. For questions and contact information, please click the link to the survey. For anyone over 18 with sickle cell, please consider participating in this project. It
Hey everyone, I’m seriously trying to set up a study dealing with Nicosan. The question in my last post has me thinking that there are some unanswered questions. The think most of the skepticism does come from the fact that it’s an African herbal remedy versus a Westernized one. There isn’t enough documentation and evidenced
Nicosan Research Study Read More »
Hey everyone, If you have gotten your Nicosan shipment and would like to take part in a study regarding that documents the benefits of Nicosan please email me. I’m also interested in Hydroxyurea users or people that use other drugs and alternatives. I’m trying to conduct a pain survey that observes the different non-traditional treatment
Announcements, Announcements, Announcements! Read More »
Hey, I just got my grades for this last semester. I rocked out y’all! My GPA is 3.9 and I’m still banging out straight A’s. Oh yeah, oh yeah *jumping up and down* Anyway, in the spirit of giving, sharing and all that Jazz, I’m going to host the sickle cell presentation I created for
Oh my goodness, i just was sent a link to the most interactive sickle cell forum on the web! It was started by an obviously tech savvy and funny fam. You can upload blogs, pix, links, videos and just pretty much everything else like you could on Myspace/Facebook and other social networking sites—but it’s all
The Adult Sickle Cell Quality of Life Measurement Information System(ASCQ-Me) Project is creating a tool to help doctors and researchersacross the U.S. better understand what it’s like for adults livingwith sickle cell disease. By understanding how sickle cell affects a person’s daily life –like how it affects sleeping, eating, being able to move around,emotions and
New Adult SCD Study Read More »
For those of you unable to get Nicosan or unwilling to join in the wonders of Nicosan, one of my readers, Charles, was kind enough to put together a list of other remedies that have been shown to alleviate sickle cell crises and pain. (Not cure—but alleviate!) I haven’t tried all of these out myself,
There is a study underway on bone marrow transplants in children that you or your child/niece/nephew/grandchild…etc. might be eligible for.The NMDP and other organizations are working together on a clinical trial for children (ages 3-16) with SCD. A study like this has never been done before and it aims to determine the effectiveness of unrelated
Jay sent me a question that I think some other people might have. So we are going to do a comparative analysis on the two medications My doctor recently put me on Hydroxyurea. I was hesitant taking it because of the long term side effect of leukemia, but in the end I took it. I’ve
Hydroxyurea vs Nicosan Read More »
This article is from the medical journal ED Nursing printed July 1st, 2007. I’m putting it on here so that more medical professionals can see that it’s not wrong to treat sickle cell patients properly. The most pertinent parts for me will be in bold. Hola at Dr. Tanabe for hitting the nail on the
Stop Delays in Treatment of Sickle Cell Patients Read More »
