This article was shared at the NING sickle cell forum. The content itself wasn’t bad, it just stated that the NCAA was considering mandatory screening of all players to prevent those that have sickle cell trait from adverse health outcomes. The premise of it sounds pretty good, screen all players to protect the ones with
Sickle Cell Test Plan by the NCAA Read More »
So September is Sickle Cell Awareness Month…I’m sure many of you already know. I’ve been out of the SSA loop for a minute but so many of my readers are going through crises right now that it’s breaking my heart. I’m sending warm hugs via cyberspace to everyone that is dealing with a crises or
NIH stops trial of drug for sickle cell patients July 28, 2009 | 10:46 am The National Institutes of Health has halted a clinical trial using sildenafil to treat pulmonary hypertension in sickle cell patients after preliminary results showed that the drug was actually increasing sickle crises rather than reducing them. Sildenafil, sold by Pfizer
PPH Sickle Cell Drug Trial Stopped Read More »
A friend on the Ning Sickle Cell forum is working with doctors at Johns Hopkins to develop training for medical students on sickle cell treatment & care. They want to know what issues we’re having with health care treatment. This is our chance to get on the soapbox and let our voices be heard. So
Nicosan is referenced on the Mayo Clinic website. We’re moving on up! Check it on the end here
Mayo Clinic on Nicosan Read More »
A new study shows that the annual cost of medical care in the US forpeople who suffer from sickle cell disease exceeds $1.1 billion. Check out the full article HERE. They report that the average total cost of care per month per patient was $1,946, with substantial variation across age groups. Total costs per patient-month
Sickle Cell costs $$$ Read More »
The United Nations and the World Health Organization has declared June 19th World Sickle Cell Awareness Day!! We have our own day y’all. Congratulations! Right now there is a huge festival in New York (I will be posting info in case you can make it), Cayman Islands, the ATL and all over the world. Please
Global Sickle Cell Awareness Day Read More »
World Sickle Cell Day Festival is June 19!!!—that’s tomorrow! Date: Friday, June 19th, 2009 Time: 10:00AM to 6:00PM Place: Dag Hammarskjold Plaza 47th Street (Between 1st & 2nd Ave) New York, NY 10017 Event: “World Sickle Cell Day” with special guest Ruben Studdard (American Idol winner) and many others The Queens Sickle Cell Advocacy Network,
World Sickle Cell Fest in NY! Read More »
Hello everyone, I’ve been digress in mentioning a few snags that have hit Nicosan. I’ve gotten several emails over the past few weeks that have alarmed me as well as sent me for more information. As many of you might know, Xechem USA filed for bankruptcy last year. Currently there is pending litigation about the
My sister sent this to me from a friend of a friend. Guess Sickle Cell is in the eye of our new president after all! Hi All, In our continuing efforts to spread awareness about Sickle Cell Disease…Gabriel and I got to meet with Pres. Obama on this past Tuesday! Can you say WHAT A
Sickle Cell & President Obama Read More »
