Posts Tagged ‘SC News and Research’
More Info on the Sickle Cell Documentary
Addendum: Anyone interested in sharing their story can followup on this. Shooting will be done in LA, and you will be flown in for the feature interview. Hope this helps! If interested, send an email to docprjtquery@demarfilms.net We are producing a feature length documentary on Sickle Cell Disease and those who live with it. Currently…
Read MoreNicosan Rising
Okay, so ever since I wrote the Nicosan Woes post, I’ve gotten several people wanting to know what’s the new scoop on Xechem. I’ve kept my ears to the ground, and after emailing a few great Nicosan friends and supporters, have found out that things seem to be looking better and brighter for Nicosan. I…
Read MoreSickle Cell Documentary
I came across this and thought someone might be interested. I’ve already sent in a request for more information (gotta do research for y’all first:) New and Engaging Documentary currently in Production seeks more cast members! Does someone you know or even yourself have Sickle Cell Disease? We are still seeking individuals and families willing…
Read MoreNicosan Testimonial
One of my readers who has been on Nicosan for about a year now, has written this wonderful review that I would like to share with everyone. If anyone else has a Nicosan story that they would love to share; good, bad or indifferent; please send it my way. Also, if you would like to…
Read MoreSickle Cell Disease Stamp —Do Your Part!
SICKLE CELL DISEASE AWARENESS STAMP In 2004 the Sickle Cell Disease Awareness Stamp was created as a part of the U.S. Postal Service’s stamp program that celebrates the people, events and history of our nation. It also served as another way for the U.S. Postal Service to continue its tradition of raising public awareness of…
Read MoreTrue Life —I Have Sickle Cell
Hey guys, MTV’s True Life is doing a story on ” I have a life altering ailment or illness.” If you are interested getting our story out there then you need to send an e-mail to seriousillness@mtvn.com. You should include your name, location, phone…etc. Let’s make sickle cell known to the folks at MTV~!
Read MoreSickle Cell Test Plan by the NCAA
This article was shared at the NING sickle cell forum. The content itself wasn’t bad, it just stated that the NCAA was considering mandatory screening of all players to prevent those that have sickle cell trait from adverse health outcomes. The premise of it sounds pretty good, screen all players to protect the ones with…
Read MoreMessage
So September is Sickle Cell Awareness Month…I’m sure many of you already know. I’ve been out of the SSA loop for a minute but so many of my readers are going through crises right now that it’s breaking my heart. I’m sending warm hugs via cyberspace to everyone that is dealing with a crises or…
Read MorePPH Sickle Cell Drug Trial Stopped
NIH stops trial of drug for sickle cell patients July 28, 2009 | 10:46 am The National Institutes of Health has halted a clinical trial using sildenafil to treat pulmonary hypertension in sickle cell patients after preliminary results showed that the drug was actually increasing sickle crises rather than reducing them. Sildenafil, sold by Pfizer…
Read MoreSpeak Up!
A friend on the Ning Sickle Cell forum is working with doctors at Johns Hopkins to develop training for medical students on sickle cell treatment & care. They want to know what issues we’re having with health care treatment. This is our chance to get on the soapbox and let our voices be heard. So…
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