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ASH is Seeking Feedback on Two New SCD Guidelines on Pain...

The American Society of Hematology (ASH) is seeking public comments on two draft clinical practice guidelines: sickle cell disease (SCD)-related pain, and SCD-related transplantation. The...

SCD Cure through Stem Cell Transplant

Exciting news!! Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children's Hospital and his team cures a Sickle Cell Disease patient through...

SC and CBS 60 Minutes

On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS 60 Minutes segment on...

Progress in Gene-Editing Therapy

Exciting news! CRISPR Therapeutics and Vertex Announce Progress in Clinical Development Programs for the Investigational CRISPR/Cas9 Gene-Editing Therapy CTX001. They have dosed the first...

Sickle Cell Disease Therapeutics Conference

Sickle Cell Disease Therapeutics Conference on September 13, 2018 Global Blood Therapeutics (GBT) will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at...

GBT’s Phase 3 HOPE study Results

GBT Announces Positive Top-line Data from Part A of the Phase 3 HOPE Study of Voxelotor in Sickle Cell Disease Primary Endpoint Achieved; 58 Percent...

5th Annual Sickle Cell Disease Patient & Family Educational Symposium

YOU’RE INVITED! The Patients, Caregivers and Community-Based Organizations of the Sickle Cell Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell...

Genetic Testing for Families

Genetic Testing for Families Affected by Genetic Recessive Disorders DNACheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients...

World Sickle Cell Day 2018

Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009...

It’s Your #SickleCell Birthday!!!

Did you know that your #SickleCell Birthday is around the corner? SCW shares her personalized letter to friends.
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