The next annual FSCDR symposium will take place June 7-9, 2019, in Fort Lauderdale, FL. The Foundation for Sickle Cell Disease Research (FSCDR) is committed to supporting innovative research in sickle cell disease (SCD) to help maximize quality of life and improve survival for the generations of people affected by SCD. Learn more and register today. Reposted from
Foundation for Sickle Cell Disease Research Symposium Read More »
The Teen Girls Organization (T Go) is a student led organization in Dar es Salaam, Tanzania that works with girls in the local community to educate them in areas not taught in their school system. The project organizes an annual career event with the intent of inspiring teen Tanzanian girls to pursue non-traditional career paths.
Sickle Cell Programme Researchers Serve as Role Models to Tanzanian Girls Read More »
The Sickle Cell Disease Association of America (SCDAA)’s 47th Annual National Convention October 9-12, 2019 Baltimore, MD This year’s theme is: Sickle Cell Community Embracing Change Together. Last year, the convention was attended by over 600 researchers, physicians, nurses, social workers, and individuals living with sickle cell disease and sickle cell trait. If you are
SCDAA Annual National Convention – Call for Abstracts Read More »
The National Academies of Sciences, Engineering, and Medicine is developing a strategic plan and blueprint for addressing sickle cell disease in the United States. The committee will provide guidance on priorities for programs, policies, and research. On Tuesday, April 16, 2019, the Committee on Addressing Sickle Cell Disease: A Strategic Blueprint and Plan for Action convened
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On April 8-9, 2019 the Sickle Cell Disease Association of America (SCDAA) hosted its annual Advocacy Day Event in Washington, DC. This year’s Advocacy Day was an opportunity for patients and caregivers affected by sickle cell disease (SCD) to advocate for stable funding for research, better healthcare access, expanded programs, and increased education and awareness
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November 5-8, 2019 The American Society of Hematology (ASH) is hosting a workshop that will train health care professionals in some of the skills necessary to establish a center focused on the needs of adults living with SCD. Tackling SCD requires a team effort, therefore, ASH is encouraging teams to apply to attend the workshop.
ASH Sickle Cell Disease Centers Workshop for Health Care Professionals Read More »
July 24 – 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted by the sickle cell patient and family community. Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients, and advisors. We are
6th Annual Sickle Cell Patient & Family Educational Symposium Read More »
The International Association of Sickle Cell Nurses and Professional Associates (IASCNAPA) established a competitive college scholarship program to assist students with sickle cell disease (SCD) who will be attending an institution of higher learning in the United States. IASCNAPA plans to distribute four $1,000 scholarships this year. Applicants must have a form of SCD and
Scholarships Available for Individuals Living With SCD Read More »
The ASH Research Collaborative (ASH RC) with CISCRP, the organization’s community engagement partner, will conduct the ASH RC Sickle Cell Disease Clinical Trials Network (CTN) Community Engagement Workshops. Registration is open for our Atlanta workshop, to be held on May 18, 2019! Why? To be a part of a new plan to create treatments that are
Community Engagement Workshops Read More »
All researchers are invited to take on the challenge of advancing cures for sickle cell disease (SCD). The Doris Duke Charitable Foundation is accepting applications through May 31, 2019, 3 pm ET to support research to advance curative approaches for SCD, including gene modification and drug therapies aiming to safely and sustainably increase red blood cells
New Funding Opportunity for Researchers – Deadline May 31, 2019 Read More »
