Community Engagement Workshops

The ASH Research Collaborative (ASH RC) with CISCRP, the organization’s community engagement partner, will conduct the ASH RC Sickle Cell Disease Clinical Trials Network (CTN) Community Engagement Workshops. Registration is open for our Atlanta workshop, to be held on May 18, 2019! 

Why? To be a part of a new plan to create treatments that are important to the sickle cell disease community and better understand the barriers to clinical trial participation.

That’s great! Tell me more. By attending the workshop, the SCD patient community will help us to create a SCD Patient-Oriented Research Priority Report that will be shared broadly with the SCD community to accelerate SCD treatment development.  This report will be reviewed and updated as new treatments, therapeutics, and SCD research is made available.

How can I help? If you know of anyone within the SCD patient community who would like to attend this workshop and help make a difference for people living with SCD, please click here to find out more!

All workshop participants will receive paid parking, a $50 gift card, as well as lunch, as a thank you for their time.

Thank you!
(If the “click here to find out more” link doesn’t work, try clicking here:
For more information about ASH RC, visit or call 202.552.4928

Reposted from the SCD Coalition April Update

Brooke Pillifant

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