The National Academies of Sciences, Engineering, and Medicine is developing a strategic plan and blueprint for addressing sickle cell disease in the United States.
The committee will provide guidance on priorities for programs, policies, and research.
On Tuesday, April 16, 2019, the Committee on Addressing Sickle Cell Disease: A Strategic Blueprint and Plan for Action convened an open session for the public. This open session included stakeholder panels on: The Impact of Sickle Cell Disease on Patients, Families, and Communities, Addressing the Needs of Sickle Cell Patients Across the Lifespan, Health Care for Sickle Cell: Health Professional Awareness and Education, and Curative Therapies for Sickle Cell Disease.
Reposted from the SCD Coalition April Update