SC News and Research

CRISPR Therapeutics and Vertex Announce FDA Fast Track Designation for CTX001 for the Treatment of Beta Thalassemia

Talk to your doctor about enrolling in the study. ZUG, Switzerland and CAMBRIDGE and BOSTON, Mass. – April 16, 2019 (GLOBE NEWSWIRE) — CRISPR Therapeutics (Nasdaq: CRSP) and Vertex Pharmaceuticals Incorporated (Nasdaq: VRTX) today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for CTX001 for the treatment of transfusion-dependent beta

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CMS Recommends Beneficiaries with Sickle Cell Disease to be Excluded from Opioid Safety Edits in Medicare Advantage and Part D Plans

On April 1, the Centers for Medicare & Medicaid Services released updates to the Medicare Advantage and Part D programs for 2020. The agency recommended that beneficiaries with SCD be excluded from the opioid safety edits. The agency references the Centers for Disease Control and Prevention Guideline for Prescribing Opioids for Chronic Pain, which states

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ASPHO Conference – Session on Sickle Cell Disease

The American Society of Pediatric Hematology/Oncology’s 2019 Annual Conference will feature a session on sickle cell disease (SCD), Friday, May 3, from 4:45 pm – 6:15 pm. The session, titled “Putting an End to End Organ Damage in Sickle Cell Disease,” will be moderated by Dr. Courtney D. Thornburg. Though the survival for pediatric patients with

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CDC Issues Key Clarification on Guideline for Prescribing Opiods for Chronic Pain

The Centers for Disease Control and Prevention (CDC) released clarification on prescribing opioids to manage pain for certain conditions. The clarification, regarding CDC’s Guideline for Prescribing Opioids for Chronic Pain– issued in a letter from the agency to the American Society of Clinical Oncology (ASCO), the American Society of Hematology (ASH), and the National Comprehensive Cancer

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ASH is Seeking Feedback on Two New SCD Guidelines on Pain and Transplantation

The American Society of Hematology (ASH) is seeking public comments on two draft clinical practice guidelines: sickle cell disease (SCD)-related pain, and SCD-related transplantation. The deadline for comments is May 13, 2019 and related materials can be found on the ASH Website. In 2018, the first three of ASH’s series of five SCD guidelines opened for public

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SCD Cure through Stem Cell Transplant

Exciting news!! Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children’s Hospital and his team cures a Sickle Cell Disease patient through their first stem cell transplant. On behalf of Sickle Cell Warriors, a huge congratulations to Dr. Jain and his entire team! Click here to read the entire article.  

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SC and CBS 60 Minutes

On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS 60 Minutes segment on the search for better treatments and a cure for sickle cell disease.  The segment captures Dr. Tisdale’s clinical trial at the NIH Clinical Center where he and his team are using gene therapy

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Sickle Cell Disease Therapeutics Conference

Annual Sickle Cell Disease Therapeutics Conference September 13, 2018 GBT will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at the Park Central Hotel in New York City on September 13, 2018.  This annual meeting brings together healthcare professionals, patients, community based organizations and advocates, investors, policy makers and industry representatives. They will

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