SC News and Research

5th Annual Sickle Cell Disease Patient & Family Educational Symposium

Living with Sickle Cell, SC News and Research /

SCW INVITES YOU! The Patients, Caregivers and CBOs of the SC Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee!  www.sicklecellconvention.com ABOUT THE SYMPOSIUM Most importantly, the SCD Patient & Family Educational Symposium (known throughout the SC community as the Warrior

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Genetic Testing for Families

Living with Sickle Cell, SC News and Research /

Genetic Testing for Families Affected by Genetic Recessive Disorders DNACheckup is a fairly new non-profit organization. It is geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. First, patients can order the tests online. Tests ship directly to the person who orders them. We work with the lab

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World Sickle Cell Day 2018

1 Comment / Advocacy and Activism, Featured Warrior, Living with Sickle Cell, Newest Features, SC News and Research, Tosin’s Corner /

World Sickle Cell Day Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We have

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Tracing sickle cell back to one child, 7,300 years ago

Advocacy and Activism, Living with Sickle Cell, SC News and Research /

Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the lives of people who suffer

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5th Annual Lowcountry Sickle Cell Disease Symposium

Advocacy and Activism, Living with Sickle Cell, SC News and Research /

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle Cell Disease is the most common inherited blood illness. Due to improvements in childhood care, many more patients are living into adulthood. There not enough

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Meet Henrietta: Student, Nurse, Warrior, Transplant, Sickle-Free!

Living with Sickle Cell, Newest Features, SC News and Research, Warriors in the Spotlight /

Today I want to share something with you. It’s something I rarely talk about and that very few people know about me. But, since yesterday was my 5 year anniversary, I am overwhelmed with feelings. I can’t believe where I am in my life today and want to share my happiness with you.   As

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Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Advocacy and Activism /

Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference. It will take place in New York City on September 14. You can view it with SCW at https://www.facebook.com/SickleCellWarriors/. This conference is the first to be entirely live streamed on our Facebook page. Through the

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