Hello everyone! Sickle Cell Warriors, we hear complaints that there is not enough being done for Sickle Cell Disease. Only a few people completed this survey which is disappointing. For instance, there are over 100,000 people with SCD in the US and millions abroad and very few people have filled it out. How can we
You Can Make a Difference! Read More »
From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. In addition, please use your own judgement, and only proceed if you feel comfortable doing so.
Research Study Request: Chronic Pain in Sickle Cell Disease Read More »
This excellent action network resource dedicates itself to sickle cell disease. For the last few months, Gary Gibson, President of the Martin Center Sickle Cell Initiative hosted this amazing show. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community, hear more about management of SCD,
Action Network at 1pm PST Tuesdays Read More »
Breaking news from all around the world in #sicklecell disease. Stem Cell Transplant in sickle cell news Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. Therefore, there is a 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great
Sickle Cell News Sept 2015 Edition Read More »
Hello Warrior Family this is our bi-annual update! This bi-annual update letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since I last penned an article on here. Thank you so much to everyone that has emailed, texted, called,
Bi-Annual Update of Sickle Cell Warriors™ Read More »
Hello everyone – here are some World Sickle Cell Day Activities! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and
World Sickle Cell Day Activities! Read More »
WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so we are just going to
SC Gathering & Educational Symposium Appreciation Read More »
We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet, or email your state representatives asking them to support the Re-authorization of the Sickle Cell Treatment Act. #sicklecellTA. Read below for more details. Here is how:
Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates! Read More »
Check out this inspiring story about a sister that took her sickle cell journey to whole new heights…literally.
Warrior Spotlight: Flying Doctors, Nigeria Read More »
Ernestine Diamond, the oldest recorded person with sickle cell in the US is 83:)
Oldest Person with Sickle Cell is 86 Read More »
