Sickle Cell Warriors

Tag "SC News and Research"

    Oldest Person with Sickle Cell is 86

Oldest Person with Sickle Cell is 86

Ernestine Diamond, the oldest recorded person with sickle cell in the US is 83:)

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    It’s Your #SickleCell Birthday!!!

It’s Your #SickleCell Birthday!!!

Did you know that your #SickleCell Birthday is around the corner? SCW shares her personalized letter to friends.

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April 2013 Newsletter: Warriors, Activate!

This was the newsletter that was mailed out to those that signed up for our monthly newsletters. It was delivered right to your email. Go into hot topics from the Facebook page, advocacy training, and details about the cruise.

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Stem Cell Questionaire

Get involved with a research study. Just a chance to do something to help the general scientific community

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1st Annual Sickle Cell Warriors Cruise

Have you ever wanted to get together with a group of Sickle Cell Warriors, your family, and friends on a vacation where you got to share your life experiences? Well then, this cruise is specifically designed just for you.

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Autumn 2012 SC News Wrap Up

So much good research, so many positive strides! Wanna know the latest and greatest in sickle cell research and advances? Get a short summation that will boost your spirits.

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August 2012 SC News Roundup

More strides in research, more celebrities involved with sickle cell awareness, more healthcare strides around the world with sickle cell.

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June 2012 SC News Update

World Sickle Cell Day, NCAA recommendations, Sickle cell organizations mobilizing, new drugs and research…get your sickle cell news update for June here.

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Sickle Cell Free, Part 1: An Interview with Patient #19

Yes it’s true. We can be cured from sickle cell. Learn all about the new stem cell transplant process from Raheem C. aka Patient No. 19.

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May 2012 SC News Update

Fundraisers, new book, lots of national and international research. Get caught up on SC news…

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Sickle Cell Free, Part 4: Life After Stem Cell Transplant

This is the finale of the interview with Raheem C, the sickle cell patient who underwent a stem cell transplant and is now sickle cell free! Congratulations Raheem! Live free and be happy!

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Sickle Cell Free, Part 2: Stem Cell Donation

In Part 2; Raheem, a 33 year old patient who recently underwent stem cell transplant, talks about the stem cell donation and retrieval process…which surprisingly is not as grueling as you might think…

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Sickle Cell Free, Part 3: The Transplant

It’s amazing how many myths existed in the sickle cell community regarding the stem cell transplant. Raheem tells us the hardcore truth!

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Participate in New Research Study for Women

A study at Wayne State University is looking for African American women with sickle cell disease who are over the age of 18 to participate in a research study about their reproductive health. Women will be asked to participate in a 1 ½ – 2 hour interview and complete a

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February, 2012 News Roundup

So many great strides I have tears in my eyes. $6 million raised in 1 night, new research with carbon monoxide, and insurance in NJ has to pay for bone marrow & stem cell transplants. Here is your monthly SC news roundup!

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Support awareness & education for SCD


Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
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