SCW is facilitating family therapy for families in Florida affected by SCD. Starting in November, meet online with a licensed psychotherapist specializing in Marriage & Family Counseling for 7 weeks in the convenience of your own home. By signing up, you will receive 7 weeks of personalized family therapy sessions for $100 per family. Sessions […]
Family Therapy offered for Families in FL through SCW Read More »
Hello Sickle Cell Community Stakeholders! Get your message to a wider audience! Share news about your research, scholarship, event, gig, organization, or business! Start here! The Sickle Cell Warriors ~ League of Sponsors is looking for new partners! The League of Sponsors helps fund sickle cell-focused programs for patients and families living with sickle cell
A Virtual Symposium Hosted by the HHS Office of Minority Health Advancing the Response to Covid-19 September 17, 2020 | 12:00 PM to 6:00 PM ET The Response to Covid-19 meeting features several things. Firstly, promising practices, programs, and strategies for combatting the pandemic in order to achieve health equity in communities of color. In
Advancing the Response to COVID-19 Read More »
A high-level summary of the efforts of Sickle Cell Warriors during the COVID pandemic and shutdown.
Updated Pandemic Response Read More »
Learn more about the sickle cell scholarship sickle cell disease. This education scholarship is for sickle cell warriors scholarship whoo are pursuing higher education. Will help with tuition for school.
Tuition Scholarship: First Annual Read More »
Global Genes LIVE! Get ready for an (un)Summit! Find a variety of engaging and educational online events, meet-ups, workshops and performances. (un)Summit: September 15-25, 2020 A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community and allies with ways to connect and engage with each other through interactive activities
(un)Summit: A RARE Patient Advocacy Read More »
Ready to join us for the sickle cell disease Livestream? Join here for the sickle cell conference disease therapeutics conference sickle cell disease pre register for livestream here at sickle cell warriors
Annual SCD Therapeutics Conference Read More »
Micromattie.com is launching a blog focused on recent developments and best practices in healthcare for Sickle Cell patients. Check it out!
A New SC Blog – Check it out! Read More »
AMPI (Alliance to Protect Medical Innovation) created this video. It is to inform legislators of the impact that our country’s various forms of investment in rare disease research has. APMI Mission Statement More life-changing medicines are available to patients now than ever before. With new medical breakthroughs treating once-untreatable conditions and diseases is possible. Innovation
AMPI Rare Disease Video Read More »
Knowledge and Confidence to Tackle SCD Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional stress that families go through due to the unpredictable episodes of pain, hospitalizations, risk of death, and more. Treatment options are few, and curative therapies like bone marrow transplants and
SC Handbook for Parents and Caregivers Read More »
