Tag: Resources
SC Handbook for Parents and Caregivers
Knowledge and Confidence to Tackle SCD
Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional...
6th Annual Sickle Cell Patient & Family Educational Symposium
July 24 - 28, 2019
Plano, TX
The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created,...
Warrior University Online Series
Dear Sickle Cell Community,
Join a 5-week webinar series on the topic “Blood Transfusions: What You Need to Know and Do”. The interactive series will include in-depth...
VOICE Crisis Alert App
VOICE Crisis Alert App
The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease.
The app stores...
Sickle Cell Disease Handbook by APHON
Sickle Cell Disease Handbook for Patients & Families
The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The...
For Teachers: Sickle Cell Disease at School
For educators, parents and children with sickle cell disease, this video is a good point of education on the challenges faced by children and adults with sickle cell disease.
Video:Ports, Catheters & IVs
video on some of the most common intravenous accesses sickle cell patients have
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