SC Handbook for Parents and Caregivers

Knowledge and Confidence to Tackle SCD

Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional stress that families go through due to the unpredictable episodes of pain, hospitalizations, risk of death, and more.

Treatment options are few, and curative therapies like bone marrow transplants and gene therapy are promising, but not yet widely accessible.

We must do something now to protect those we love.

Knowledge truly is power, education is the key, and advocacy is the force to defeat this disease. Living Well with Sickle Cell provides that knowledge and support. Together, we can provide the advocacy needed for a healthier future. Living Well with Sickle Cell will give you the knowledge and confidence you need to take on a sickle cell diagnosis and advocate for your child’s health and well-being.

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