Tag: Crises and Pain
SCW Video: Hallucinations and Sickle Cell
Have you ever had a crazy dream or hallucination while on pain meds? Sometimes our brain creates these alternate realities as an escape because...
VOICE Crisis Alert App
VOICE Crisis Alert App
The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease.
The app stores...
Public Meeting for Patient-Focused Drug Development on Chronic Pain
Public Meeting for Patient-Focused Drug Development on Chronic Pain
Meeting Information
On July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for...
How Do You Still Believe in a Loving God?
Ever wondered why God allows you to have sickle cell pain? Well you are not alone.
Rainy Lake Medical Center, International Falls, MN – Negative Review
Hello everyone,
Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive...
Sickle Cell and Endari
**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website.
Hello...
Avascular Necrosis, Hip Replacements and Sickle Cell
What to do with AVN when you are young?
See the message below!
I am young (in my early 20s) and I had a hip replacement...
Stop Mistreatment of Sickle Cell Patients in the Emergency Room
Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain...
Research Study Request: Chronic Pain in Sickle Cell Disease
From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of...
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