Doctor, I’ve been having pains for the past 3 weeks now and it isn’t getting any better, Regina explained as she sat restless by the doctor’s table. You see, one thing that has kept you in pain is that you’ve stressed yourself beyond what your body can carry and as a sickle cell patient, you […]
Mental Health: Talk to Your Doc Read More »
10th Annual Sickle Cell Disease Therapeutics Conference September 15, 2021 9 am – 4 pm EST Visit the SCW Facebook page to join the GBT Livestream Sickle Cell Warriors, Inc. (SCW) and (Global Blood Therapeutics) GBT partner to host the annual Livestream of the 2021 Sickle Cell Disease Therapeutics Conference (SCDTC). Firstly, learn about the
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Sickle Cell Warrior Death Inquest Reveals Gross Negligence in Hospital This makes me so mad. Rest Pain-free Mr. Evan Smith, Your death will not be in vain, you will save many warriors, I promise. Shame on you North Middlesex Hospital. All their excuses don’t matter. This young man lost his life due to poor medical
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Way to go on your COVID-19 vaccine! Full vaccination occurs two weeks after the final dose according to the US Centers for Disease Control and Prevention (CDC). A lot of people wonder what they can do once they are fully vaccinated. An infectious disease specialist answered some of the common questions, which we have summarized
Covid Vaccine, You Got it, Now What? Read More »
New survey finds that treatment in the emergency room for patients with sickle cell disease is not ideal. This is a longstanding issue, but warriors now demand justice. It will be addressed by #BlackHealthMatters initiative
Emergency Care not Ideal for SC Patients Read More »
Study Finds Emergency Care is Not Ideal Most people with sickle cell disease (SCD) in the U.S. are happy with their PCPs, but less so with emergency care given at a hospital to manage severe pain, according to a survey of more than 400 teenage and adult patients. How a person expects to be treated
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Have you ever had a crazy dream or hallucination while on pain meds? Sometimes our brain creates these alternate realities as an escape because the sickle cell pain is so unbearable in our current state. Has this ever happened to you? Share your story with us!
SCW Video: Hallucinations and Sickle Cell Read More »
VOICE Crisis Alert App First national app created for patients and families with sickle cell disease The app stores all its data locally on your phone, so it’s private. In addition to being a crisis pain tracker tool storable for 90 days with an in-app pain diary to share with your health care provider and
VOICE Crisis Alert App for SC Read More »
Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, the FDA is hosting a public meeting for people with pain. Therefore, the FDA wants to hear how people deal with chronic pain, how they feel about treatment approaches, and problems they have accessing treatments. Above all, they want to
Public Meeting for Patient-Focused Drug Development on Chronic Pain Read More »
Ever wondered why God allows you to have sickle cell pain? Well you are not alone.
How Do You Still Believe in a Loving God? Read More »
