Sickle Cell and Endari

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine. Its formuls is for sickle cell disease. When taken as directed, it has…

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Avascular Necrosis, Hip Replacements and Sickle Cell

What to do with AVN when you are young? See the message below! One and a half years ago I had a hip replacement and I am young (in my early 20s). I had AVN in my left hip which progressively got worse over the course of 8 years to the point where I could…

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Research Study Request: Chronic Pain in Sickle Cell Disease

From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. In addition, please use your own judgement, and only proceed if you feel comfortable doing so.…

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Pack it Up!

The Boy Scout motto is Be Prepared. As a Sickle Cell Warrior or Caregiver, you too must always be prepared. Get ready for a crisis with your bags packed

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Stop The Pain Before It Starts!

Ever wondered what else you can do to improve your health, avoid sickle cell episodes, and generally feel better? Here are some basic tips to get you started–from one warrior to another.

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