Back From Another Crises

First of all, I will update the ticker. Now it’s only been a 5 days since my last admission, bummer—what a way to start the year. But I’m not going to gripe about it, such is the lot in my life. Everyone has their burden to bear. Last year I had 3 major hospitalizations, actually,…

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Crises #1 of 2008: Triggers

Okay, so I’m trying to think about everything that contributed to this last crises, so that I can do better with the ‘taking care of myself’ part and prevent another one from happening. Working Overtime: Overtime pay rocks, but the OT on my body was a bad call. I thought that I was fine, actually…

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Sickle Cell & Cold

Today I was asked a question by a friend, “Which do you like better, hot or cold?” My answer was a vehement HOT! Not just because it’s so miserable being cold but mainly because when I’m cold for a period of time (like more than 20 minutes), I put myself at a higher risk of…

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Double Whammy

I’d been skating on thin ice for weeks, dealing with daily pain and my eyes were definitely juandiced. I knew I was about to fall sick, the question was when. 2 weeks ago, I was thrown into a crushing series of L3’s uncontrolled by meds. This hit me right after work, when I was on…

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Here We Go Again

Just when I started thinking I was going to be doing great for a while.Just when I started getting into the groove of this exercising thing.Just when I started taking Pro-Arginine and feeling great.Just when I started getting used to my hours at work. Just when my life starts getting normal again. BAM! I fall…

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Trepidation

I have this weird feeling in my leg. It first started in my thigh, like a tight muscle. I had Norio massaging it last night with some relief but I could still feel a knot there. Today the next symptom was tingling. It’s on the same leg but the tingling is in my left foot…

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Hola!

I’m here, present and accounted for. Norio and I were both laid out in pain yesterday, he threw his back out playing tennis, and I was hurting L2s per usual. I wanted to get him some Motrin but I could barely move. Good thing I keep a stash of painkillers on the bookshelf by the…

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Diary of a Crises

I wrote this years ago, what was going through my mind when a crises hit me. It’s kinda long, but really loopy. It’s also really convoluted, I wrote this under the influence, I’ve tried editing but even I can’t decipher the craziness that is the talk between my brain, my body and my spirit. Tuesday…

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Pain Scale

Living with sickle cell means living with chronic and acute pain. I have pain every single day of my life…sometimes it’s worse than others, and sometimes it’s just minor twinges that I can will away. I actually have a very high pain thresh-hold, I go for as long as possible without taking pain meds because…

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