Learn more about the sickle cell scholarship sickle cell disease. This education scholarship is for sickle cell warriors scholarship whoo are pursuing higher education. Will help with tuition for school.
Tuition Scholarship: First Annual Read More »
Preregister for the Sickle Cell Disease Therapeutics Conference right here. Watch the livestream here on the Sickle Cell Warriors website.
GBT Livestream Registration Read More »
Global Genes LIVE! Get ready for an (un)Summit! Find a variety of engaging and educational online events, meet-ups, workshops and performances. (un)Summit: September 15-25, 2020 A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community and allies with ways to connect and engage with each other through interactive activities
(un)Summit: A RARE Patient Advocacy Read More »
Ready to join us for the sickle cell disease Livestream? Join here for the sickle cell conference disease therapeutics conference sickle cell disease pre register for livestream here at sickle cell warriors
Annual SCD Therapeutics Conference Read More »
AMPI (Alliance to Protect Medical Innovation) created this video. It is to inform legislators of the impact that our country’s various forms of investment in rare disease research has. APMI Mission Statement More life-changing medicines are available to patients now than ever before. With new medical breakthroughs treating once-untreatable conditions and diseases is possible. Innovation
AMPI Rare Disease Video Read More »
Increasing Appointment Attendance: A Vital Opportunity to Improve Health Outcomes for Those Living with Sickle Cell Diseases August 10, 2020, 3:30 – 4:30 p.m. ET To make health outcomes better, national rules for routine follow-up appointment every six months. More often for patients on specific drugs or having probelms. Yet, a 2019 national study showed that
NICHQ Webinar: Appointment Attendance Read More »
Connect with over 25,000 patients and we are still growing! Sickle Cell Warriors is the largest patient-run global advocacy organization for sickle cell disease. Connect with us today!
Connect with SCW today Read More »
Knowledge and Confidence to Tackle SCD Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional stress that families go through due to the unpredictable episodes of pain, hospitalizations, risk of death, and more. Treatment options are few, and curative therapies like bone marrow transplants and
SC Handbook for Parents and Caregivers Read More »
July 24 – 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted by the sickle cell patient and family community. Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients, and advisors. We are
6th Annual Sickle Cell Patient & Family Educational Symposium Read More »
SCDC Sickle Cell Data Collection program Register for Webinar “What’s New at SCDAA” Wednesday, April 24, 2019 10:00 AM – 11:30 PM PST Register now: https://attendee.gotowebinar.com/register/1778776015181580301 Presented by Ms. Beverley Francis-Gibson, SCDAA President and CEO, and Dr. Biree Andemariam, SCDAA Chief Medical Officer. Tracking California’s Sickle Cell Data Collection for California program invites you to attend a webinar, “What’s New at the
Webinar “What’s New at SCDAA” Read More »
