Living with Sickle Cell

Posts feature topics on work, school, travel, life, diet and all other coping strategies with sickle cell.

SCW Video: Pain…grrrrr

Better Access to Treatment

How do we provide better access to treatment for SC Warriors in our own communities? @NICHQ

High Rates of Preterm Birth

How do we reduce this rate in our own communitites? @NICHQ

6th Annual Sickle Cell Patient & Family Educational Symposium

July 24 - 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created,...

Addressing Health Disparities

How can we address health disparities in our own communities? What works and what doesn't? @NICHQ

SCW Video: Going With The Flow

Health Disparities

How do you think we can reduce health disparies for people all over the world? How do we raise our voice in our community? @NICHQ

Get Your “Sickle Cell Matters” T-Shirt

“Sickle Cell Matters” T-Shirt awareness raising/fundraising campaign Purchase your T-Shirt by clicking here! Wear it in support of World Sickle Cell Day on June 19th This link...

Comments on Practice Guidelines for SCD

The American Society of Hematology (ASH) is seeking comments on two additional draft clinical practice guidelines on sickle cell disease (SCD): pain and transplantation....

SCW Video: Fatigue
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