SCD Cure through Stem Cell Transplant
Exciting news!!
Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children's Hospital and his team cures a Sickle Cell Disease patient through...
Sickle Cell Phone Survey Opportunity for Patients and Caregivers!
This patient and caregiver survey seeks to understand the experience sickle cell patients have had with their disease as well as their interaction with...
Webinar “What’s New at SCDAA”
SCDC
Sickle Cell Data Collection program
Register for Webinar
"What's New at SCDAA"
Wednesday, April 24, 2019
10:00 AM - 11:30 PM PST
Register now:
https://attendee.gotowebinar.com/register/1778776015181580301
Presented by Ms. Beverley Francis-Gibson, SCDAA President...
Support the Global Genes Team
Global Genes has formed a running team for the OC Marathon to raise money and awareness for rare disease community activities. Warriors - join...
SCD Clinical Trials Network Workshops
ASH Research Collaborative Hosts SCD Community Engagement Workshops
Join the ASH Research Collaborative for a series of fun and engaging Sickle Cell Disease Community Engagement...
SCW Video: Iron Overload And Fatigue
https://www.youtube.com/watch?v=DJTqiHUeYok&t=1s
FDA Public Meeting – Patient Perspectives on the Impact of Rare...
Registration Open: FDA Public Meeting - Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities
On Rare Disease Day, FDA announced the Agency will host...
SC and CBS 60 Minutes
On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS 60 Minutes segment on...
Progress in Gene-Editing Therapy
Exciting news! CRISPR Therapeutics and Vertex Announce Progress in Clinical Development Programs for the Investigational CRISPR/Cas9 Gene-Editing Therapy CTX001. They have dosed the first...
