Parents and Caregivers SC Handbook
Knowledge and Confidence to Tackle SCD
Sickle Cell Disease is well known for the pain that it causes patients, parents, and caregivers. What isn’t widely researched is the emotional stress that families go through. Emotional stress is due to the unpredictable episodes of pain, hospitalizations, risk of death, and more.
Treatment options are few, and curative therapies like bone marrow transplants and gene therapy are promising, but not yet widely accessible.
Parents, we must do something now to protect those we love.
Knowledge truly is power, education is the key, and advocacy is the force to defeat this disease. Living Well with Sickle Cell provides that knowledge and support. Together, we can provide the advocacy needed for a healthier future. Living Well with Sickle Cell will give you the knowledge and confidence you need to take on a sickle cell diagnosis and advocate for your child’s health and well-being.
Interested in reading other parenting articles about sickle cell – check out another one here. There are some great parenting resources available for those parents who has children suffering from sickle cell. But it is not just for parents, grandparents and caregivers can also learn a lot from reading this book. It can be found on Amazon with a great set of reviews!!