Living with Sickle Cell

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SC Warrior Death due to Hospital Negligence

Sickle Cell Warrior Death Inquest Reveals Gross Negligence in Hospital This makes me so mad.  Rest Pain-free Mr. Evan Smith, Your death will not be in vain, you will save many warriors, I promise. Shame on you North Middlesex Hospital. All their excuses don’t matter. This young man lost his life due to poor medical

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SC Handbook for Parents and Caregivers

Knowledge and Confidence to Tackle SCD Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional stress that families go through due to the unpredictable episodes of pain, hospitalizations, risk of death, and more. Treatment options are few, and curative therapies like bone marrow transplants and

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SCDC Webinar: Unite Sickle Cell

Sickle Cell Data Collection Program “Unite Sickle Cell: Collaboration and Community in Sickle Cell” Wednesday, September 18, 2019 1:30 – 3:00 PM PDT Register now:  https://attendee.gotowebinar.com/register/2843093377260613389   Presented by Dr. Nik Rashid and Ms. Linetta Barnes from Nevada and Ms. Mary Brown and Ms. Jennifer Fields from the Sickle Cell Disease Foundation of California. Tracking California’s

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