July 24 – 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted by the sickle cell patient and family community.  Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients, and advisors. We are…

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The American Society of Hematology (ASH) is seeking comments on two additional draft clinical practice guidelines on sickle cell disease (SCD): pain and transplantation. All members of the public are invited to review the draft recommendations and submit comments, including physicians and researchers, allied professionals, industry and insurance company representatives, patients, caregivers, and general members…

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SCDC Sickle Cell Data Collection program Register for Webinar “What’s New at SCDAA” Wednesday, April 24, 2019 10:00 AM – 11:30 PM PST Register now:  https://attendee.gotowebinar.com/register/1778776015181580301     Presented by Ms. Beverley Francis-Gibson, SCDAA President and CEO, and Dr. Biree Andemariam, SCDAA Chief Medical Officer. Tracking California’s Sickle Cell Data Collection for California program invites you to attend a webinar, “What’s New at the…

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Global Genes has formed a running team for the OC Marathon to raise money and awareness for rare disease community activities.  Warriors – join the team to run, help volunteer, or come and cheer on the team as they run. Either way we would love to have you involved! For more information check out the…

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Registration Open: FDA Public Meeting – Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities On Rare Disease Day, FDA announced the Agency will host a public meeting – “Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities” on April 29, 2019. The purpose of the meeting is to obtain patients’ and caregivers’ perspectives on the impacts…

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The #ShowYourRare campaign was launched in 2018. The campaign has inspired the Rare Disease Day 2019 poster and videos. Rare diseases affect an estimated 300 million people around the world. There are over 6000 different diseases. So rare’s not so rare after all. Support the rare disease community by showing your rare. With your help, we can raise awareness…

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Hello warriors! We have just over a week until February 28th, which is Rare Disease Day! In the US, a rare disease is defined as one that affects a minor population of less than 200,000 people. Sickle cell disease falls under the collective umbrella of Rare Diseases, so its another great opportunity to spread the…

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Sickle Cell Warriors, Inc. is a non-profit charitable organization dedicated to elevating education, empowerment, advocacy, and awareness about sickle cell disease. Our mission is to inspire those affected by sickle cell. As of this minute, you are no longer alone. You have us—and we have you. Welcome to the Warrior family. WHO WE ARE The…

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The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community.  Conference attendees will hear from innovative industry leaders, patients, physicians, community based organizations and biotech companies. For more information about the conference, email scdconference@gmail.com Registration is required. Click here to register. Hear from…

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Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means, for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes To stay four nights at one of the best hotels in downtown Sacramento AND…

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