Advocacy and Activism Archives - Page 2 of 10

SC Warrior Death due to Hospital Negligence

Sickle Cell Warrior Death Inquest Reveals Gross Negligence in Hospital This makes me so mad. Rest Pain-free Mr. Evan Smith, Your death will not be in vain, you will save many warriors, I promise. Shame on you North Middlesex Hospital. All their excuses don’t matter. This young man lost his life due to poor medical…

Survey: Draft Fact Sheets on SCD Therapies

The Sickle Cell Disease Coalition (SCDC), is developing fact sheets on sickle cell disease (SCD) therapies for the community and would appreciate your help reviewing the draft resources. As background, the SCDC formed to amplify the voice of the SCD stakeholder community to improve outcomes for individuals with SCD and Sickle Cell Warriors, Inc. is a…

Happy November from the SCW team!

November vibes for warriors, a special message for the community.

Register for SCDTC LiveStream

pre-register and watch the sickle cell disease therapeutics conference here live sickle cell disease awareness month warriors

Pre-Registration for LiveStream

Click here to register and watch the sickle cell disease therapeutics conference. Watch live here on Tuesday; sickle cell disease awareness month is for warriors, it’s our time to shine!

Emergency Care not Ideal for SC Patients

New survey finds that treatment in the emergency room for patients with sickle cell disease is not ideal. This is a longstanding issue, but warriors now demand justice. It will be addressed by #BlackHealthMatters initiative

SCWs COVID Highs and Lows

COVID Pandemic Lesson: Learn to Flow Like Water Once the COVID Pandemic and shutdown hit California, it quickly became apparent that traveling to events was going to be off the table for a while. Sickle Cell Warriors, Inc. and other sister organizations in the advocacy sphere, we all had to move quickly, as information and…

GBT Livestream Registration

Preregister for the Sickle Cell Disease Therapeutics Conference right here. Watch the livestream here on the Sickle Cell Warriors website.

(un)Summit: A RARE Patient Advocacy

Global Genes LIVE! Get ready for an (un)Summit! Find a variety of engaging and educational online events, meet-ups, workshops and performances. (un)Summit: September 15-25, 2020 A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community and allies with ways to connect and engage with each other through interactive activities…

COVID Sickle Cell Warriors Impact Study

To best serve you during this trying year, Sickle Cell Warriors, Inc. has developed a short study. Data received will be used to guide program development and education. This falls under our mission objectives of Research, Advocacy & Education.