Click here to register and watch the sickle cell disease therapeutics conference. Watch live here on Tuesday; sickle cell disease awareness month is for warriors, it’s our time to shine!
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New survey finds that treatment in the emergency room for patients with sickle cell disease is not ideal. This is a longstanding issue, but warriors now demand justice. It will be addressed by #BlackHealthMatters initiative
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A Virtual Symposium Hosted by the HHS Office of Minority Health Advancing the Response to Covid-19 September 17, 2020 | 12:00 PM to 6:00 PM ET The Response to Covid-19 meeting features several things. Firstly, promising practices, programs, and strategies for combatting the pandemic in order to achieve health equity in communities of color. In
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Preregister for the Sickle Cell Disease Therapeutics Conference right here. Watch the livestream here on the Sickle Cell Warriors website.
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AMPI (Alliance to Protect Medical Innovation) created this video. It is to inform legislators of the impact that our country’s various forms of investment in rare disease research has. APMI Mission Statement More life-changing medicines are available to patients now than ever before. With new medical breakthroughs treating once-untreatable conditions and diseases is possible. Innovation
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To best serve you during this trying year, Sickle Cell Warriors, Inc. has developed a short study. Data received will be used to guide program development and education. This falls under our mission objectives of Research, Advocacy & Education.
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Increasing Appointment Attendance: A Vital Opportunity to Improve Health Outcomes for Those Living with Sickle Cell Diseases August 10, 2020, 3:30 – 4:30 p.m. ET To make health outcomes better, national rules for routine follow-up appointment every six months. More often for patients on specific drugs or having probelms. Yet, a 2019 national study showed that
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Study Finds Emergency Care is Not Ideal Most people with sickle cell disease (SCD) in the U.S. are happy with their PCPs, but less so with emergency care given at a hospital to manage severe pain, according to a survey of more than 400 teenage and adult patients. How a person expects to be treated
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Michael Greger M.D. FACLM June 17th, 2020 Volume 50Cov What can we learn from other countries and the 1918 pandemic to slow COVID-19? I’ve talked about where the COVID-19 coronavirus came from, and how we might prevent such emergences from animals in the future, but now that it’s spreading human-to-human, what can we do about it? Social
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California Warriors, Call to Action: Get SCD Funded in the State Budgets are being formed for the coming fiscal year in Washington next week and we need to take action. We’ve just learned that both the House and the Senate are considering including funding for CDC’s SCDC (surveillance) program, which has not been funded by
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