Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their
Sickle Cell Disease Handbook by APHON Read More »
Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference. It will take place in New York City on September 14. You can view it with SCW at https://www.facebook.com/SickleCellWarriors/. This conference is the first to be entirely live streamed on our Facebook page. Through the
Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017 Read More »
I’m not a warrior but I’m a warrior wife, so I’ve been on the other side of your story. I hope that this gives you hope and courage to face whatever relationship hurdles you are going through. My story is almost something out of a Nigerian movie, but this is a true story. My true
Love Overcomes Sickle Cell: Meet Linda & Steve Read More »
It’s been very hard to obtain life insurance with sickle cell disease. Here are a few tips that may get your application approved.
Life Insurance with Sickle Cell Read More »
KiAnna Hi, my name is KiAnna and I’m 24 going on 25 this spring. I’m adopted and the oldest of 11. Five adopted, five biological to my adopted parents, and 2 in-laws! Recently married to my best friend and love Kyle! I was born to a very young couple. My birth father died when he
Meet KiAnna – Daughter, Wife, Warrior Read More »
Hello everyone! Sickle Cell Warriors, we hear complaints that there is not enough being done for Sickle Cell Disease. Only a few people completed this survey which is disappointing. For instance, there are over 100,000 people with SCD in the US and millions abroad and very few people have filled it out. How can we
You Can Make a Difference! Read More »
Breonna asks, “Where are all the Warriors in nursing school? I am about to begin my second semester of LPN school and I have two children. What are you doing to stay healthy, avoid stress and pain, and still keep your grades up?” Many of us enter the nursing profession, and it’s possible to be
Tips: Nursing School with Sickle Cell Read More »
Many sickle cell warriors suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that side of the hip and leg, and often to walk with a cane if it gets bad. You don’t have to suffer in silence. This is a
5 Tips for Managing Avascular Necrosis Read More »
