This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior. Â Knowing that everyone on your child’s medical team has your family’s best interest is one of the greatest components. Â However, when you
Who’s Really On Your Sickle Cell Team? Read More »
RN Tosin Ola Answers Your Sickle Cell Questions Interview with Tom Joyner In this interview with Tom Joyner, check out our Founder, Tosin Ola’s interview on his radio show. Repping for Sickle Cell all the time. In addition, consider telling others. Awareness is integral and we all must do our part. Love your support Warrior
Interview with Tom Joyner: Get Well Wednesday Read More »
As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease. Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice. The doctors immediately admitted her and gave her a blood transfusion. Next, they ran all kinds of tests and did a
Don’t Be Bullied by Doctors! Read More »
What happens when your newborn has sickle cell? Most people are excited to bring a bundle of joy into the world. Â As a mom, you love them from the moment you feel that first burst of life moving in your belly. Â But what happens when the doctors tell you your baby may or may not
So My Newborn Has Sickle Cell…What Now? Read More »
Wishing you all the blessings and joy this happy new year in 2016! May you find the strength to live your very best life. and keep on fighting until there is a universal cure or multimodal treatment for us all. Love, hugs, and stay blessed. The year 2016 is set to be a great year!
Happy New Year in 2016! Read More »
The most important day of my life is the day my parents explained the essence of the pain I have gone through majority of my life. Around the age of seven, I was slowly being informed about what made me different from the rest. The Beginning The very beginning of any child’s existence would have
Isata Lakoh – The Most Important Day Read More »
From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. In addition, please use your own judgement, and only proceed if you feel comfortable doing so.
Research Study Request: Chronic Pain in Sickle Cell Disease Read More »
This excellent action network resource dedicates itself to sickle cell disease. For the last few months, Gary Gibson, President of the Martin Center Sickle Cell Initiative hosted this amazing show. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community, hear more about management of SCD,
Action Network at 1pm PST Tuesdays Read More »
To all the Warrior Moms, Dads, Lovers, Sisters, Brothers, Husbands, Wives, Children & Caregivers. This beautiful ode is for you. Thank you for being our angels. You are Beautiful Have you seen the angel in your world. She is a beauty to behold! Her wings were brilliant but fragile. when she tries to flaps, the
Beautiful Ode to the Caregiver Read More »
This recipe has all the earmarks of being perfect for those with sickle cell; great root vegetables, easy to prepare, and rich in thiocyanate
Roasted Beets and Sweets Read More »
