Sickle Cell Disease Handbook by APHON
Sickle Cell Disease Handbook for Patients & Families
At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families.
For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their children. The handbook is at a 6th grade reading level.
This is a free resource provided by APHON for parents, warriors, and families dealing with sickle cell disease. In addition, you can read and download the handbook below.