Sickle Cell Warriors

Tag "Advocacy and Activism"

    Guidelines for the Day of Prayer #SickleCell50

Guidelines for the Day of Prayer #SickleCell50

Here are the Prayer & Meditation Guidelines for the first ever 50 Hour International Day of Prayer for Sickle Cell Disease #SickleCell50

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    April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

It’s been a long time coming, but here is our first international challenge that focuses how we can change the world—together.

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    First Quarter Update from SCW, Inc.

First Quarter Update from SCW, Inc.

Remember at the beginning of the year when Lakiea and I promised that this year was going to be EPIC and so different from every other year of SCW? We’ve been working hard to make that happen. We are only 3 months in, and we’ve already stepped it up with

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    Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet, or email your state representatives asking them to support the Re-authorization of the Sickle Cell Treatment Act. #sicklecellTA. Read below for more details. Here is how:

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    12 Things You Didn’t Know about Sickle Cell Warriors, Inc.

12 Things You Didn’t Know about Sickle Cell Warriors, Inc.

Ever wanted to learn more about what goes on behind the scenes at Sickle Cell Warriors, Inc? Well here is a short overview to give you further insights.

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    Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation

Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation

This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the late Linda Collins it has continued on its vision to be a strong advocate and make a difference in improving the quality of life for those affected by sickle cell

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    Tell the FDA

Tell the FDA

The FDA meeting is coming up on February 7, 2014 in Silver Springs, MD. Sickle cell advocates, patients, families, and members of the health care industry will all be in attendance. Even if you cannot come, your participation is necessary. It is time to use your voice. Tell the FDA

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    Why is the FDA Meeting on Sickle Cell Important?

Why is the FDA Meeting on Sickle Cell Important?

I just turned in my answers to the FDA questions. A member of the SCW Facebook page said this, “What is the big deal with the FDA meeting, and why should we even try to go? Especially since most of us that have sickle cell are on a limited income,

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    Expert Patient Series Register HERE!

Expert Patient Series Register HERE!

Registration for the Expert Patient classes is now open.

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    T-Boz and Sickle Cell on the Doctors show

T-Boz and Sickle Cell on the Doctors show

TBoz talks about sickle cell on the Doctor’s Show on TV, and gives suggestions on how to improve your sickle life via diet.

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    Organization in the Spotlight: Baton Rouge Sickle Cell Anemia Foundation

Organization in the Spotlight: Baton Rouge Sickle Cell Anemia Foundation

Learn more about the Baton Rouge Sickle Cell Anemia Foundation, and reach out to them or the sickle cell organization in your neighborhood to see how you can help!

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    Advocacy Training

Advocacy Training

Brief synopsis of the Advocacy Training class. Get ready to fire up your activism, get involved, and take sickle cell awareness to the next level.

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RIP Jasmine Bailey, the Warrior with a Microphone

SCW mourns the passing of one of our own, a warrior with a microphone. Rest in Peace Jaz.

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Year of Achievement

Dr. Bailey expounds on the strides that SCW has completed this year, and plans for next year.

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    Are You a Victim or Warrior?

Are You a Victim or Warrior?

It’s so easy to sit back, complain, and expect things to change, but if we are not a part of the change, solution, and activism; then we are a part of the problem. Tamera eloquently addresses several issues plaguing the sickle cell community.

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From CT Sickle Cell Org---my favorite SCD PSA.

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