Sickle Cell Warriors

Tag "Advocacy and Activism"

    Bi-Annual Update of Sickle Cell Warriors™

Bi-Annual Update of Sickle Cell Warriors™

Hello Warrior Family! This letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since I last penned an article on here. Thank you so much to everyone that has emailed, texted, called, and posted

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    World Sickle Cell Day Activities!!!

World Sickle Cell Day Activities!!!

Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and if we did, we

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Know Who You Are!

Know Who You Are! Greeting to All, it’s been a minute, my SC parents! My warrior has been continuously sick since my last article posting and hence my writing had slowed! But God has blessed me with my second wind and inspired me to write for all my SC parents

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    Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Sickle Cell Warriors!!! We need your help!  Please read the letter below and  send your comment into the FDA. We have until February 16th to respond as a community. The deadline is coming up quick! The Pediatric Rare Disease Voucher Program was created for sickle cell disease, however, due to

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    SC Gathering & Educational Symposium Appreciation

SC Gathering & Educational Symposium Appreciation

WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so

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    Sickle Cell Families Need Direct Support Services

Sickle Cell Families Need Direct Support Services

Being the parents of a Sickle Cell Warrior (SCW), we know giving up is never an option. Even when we don’t receive the needed support to get through each crisis, we can never lose hope or our smile. Your child survives merely through the pain from your strength/smile. But who

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    Program for the SCW Gathering & Educational Symposium July 17-20

Program for the SCW Gathering & Educational Symposium July 17-20

2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements will be made if there are any changes. Always bring your journal or notebook with you. THURSDAY, JULY 17TH   8:00PM – 9:00PM       

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    All About the Sickle Cell Gathering

All About the Sickle Cell Gathering

Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This year it is in Atlanta, GA from July 17-20, 2014 at the DoubleTree by Hilton Hotel in Buckhead. We are delighted to invite you

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    Guidelines for the Day of Prayer #SickleCell50

Guidelines for the Day of Prayer #SickleCell50

Here are the Prayer & Meditation Guidelines for the first ever 50 Hour International Day of Prayer for Sickle Cell Disease #SickleCell50

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    April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

It’s been a long time coming, but here is our first international challenge that focuses how we can change the world—together.

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    First Quarter Update from SCW, Inc.

First Quarter Update from SCW, Inc.

Remember at the beginning of the year when Lakiea and I promised that this year was going to be EPIC and so different from every other year of SCW? We’ve been working hard to make that happen. We are only 3 months in, and we’ve already stepped it up with

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    Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet, or email your state representatives asking them to support the Re-authorization of the Sickle Cell Treatment Act. #sicklecellTA. Read below for more details. Here is how:

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    12 Things You Didn’t Know about Sickle Cell Warriors, Inc.

12 Things You Didn’t Know about Sickle Cell Warriors, Inc.

Ever wanted to learn more about what goes on behind the scenes at Sickle Cell Warriors, Inc? Well here is a short overview to give you further insights.

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    Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation

Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation

This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the late Linda Collins it has continued on its vision to be a strong advocate and make a difference in improving the quality of life for those affected by sickle cell

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    Tell the FDA

Tell the FDA

The FDA meeting is coming up on February 7, 2014 in Silver Springs, MD. Sickle cell advocates, patients, families, and members of the health care industry will all be in attendance. Even if you cannot come, your participation is necessary. It is time to use your voice. Tell the FDA

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