Living with Sickle Cell

Posts feature topics on work, school, travel, life, diet and all other coping strategies with sickle cell.

SCW Video: No more Lifespans

SCW Video: Traveling, Oxygen and Sickle Cell

SCW Video: Hallucinations and Sickle Cell

Have you ever had a crazy dream or hallucination while on pain meds? Sometimes our brain creates these alternate realities as an escape because...

SCW Video: Facebook and Health Activism

SCW Video: Why I’m a Health Activist

Livestream of FDA-ASH SCD Clinical Endpoints Workshop

Livestream of FDA-ASH SCD Clinical Endpoints Workshop  October 17-18, 2018 The FDA-ASH Sickle Cell Disease (SCD) Clinical Endpoints Workshop aims to identify opportunities to bring uniformity...

SCW Video: IVs, PICCs, Catheters and Ports

VOICE Crisis Alert App

VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores...

Get the Match Livestream

Get the Match Livestream September 28 1 pm - 4 pm PST (8:00 pm - 11 pm GMT) There is a point in which all of...

SCW Video: Don’t Call me a Sickler!
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