Advocacy and Activism

This section focuses on news in advocacy and activism for sickle cell disease. Get the latest on actionable legislative actions, state advocacy efforts, local, national, and global campaigns to improve care and the lives of those with SCD. We need your voice. Get involved, sign a petition, use your network, call your house representatives and senators, share your story, and make an impact.

Sickle Cell Patient & Family Educational Symposium

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle...

World Sickle Cell Day 2018

Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009...

Tomorrow, June 19, is World Sickle Cell Day!

On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, with the American Society of Hematology...

June 19th is World Sickle Cell Day!

What are your plans to celebrate World Sickle Cell Day? I hope you have some...if not...get some!

Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for...

SCD Adult Support Groups in Southern California

California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley....

Sickle Cell Spoken Word Poetry

Spoken word is an oral art that melds together words and phrases in beautiful patterns that are punctuated by intonation and undulation.  Take a...

Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD...

5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle Cell Disease...

Registration Open for Sickle Cell Patient & Family Convention 2018

Hello Warrior Family, Registration is now open for the 2018 Annual Sickle Cell Patient & Family Educational Symposium. To learn more visit www.sicklecellconvention.com. This is the...
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