Sickle Cell Warriors

Advocacy and Activism

Bi-Annual Update of Sickle Cell Warriors™

    Bi-Annual Update of Sickle Cell Warriors™

Hello Warrior Family! This letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since

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World Sickle Cell Day Activities!!!

    World Sickle Cell Day Activities!!!

Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all

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Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

    Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Sickle Cell Warriors!!! We need your help!  Please read the letter below and  send your comment into the FDA. We have until February 16th to respond as a community. The

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SC Gathering & Educational Symposium Appreciation

    SC Gathering & Educational Symposium Appreciation

WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea &

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Program for the SCW Gathering & Educational Symposium July 17-20

    Program for the SCW Gathering & Educational Symposium July 17-20

2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements will be made

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All About the Sickle Cell Gathering

    All About the Sickle Cell Gathering

Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This year it is in

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It’s NOT Always Sickle Cell

    It’s NOT Always Sickle Cell

In the last few weeks, several warriors have told me that they had other health problems besides sickle cell that was not addressed or diagnosed quickly by their physician because at first, the doctor chalked it up to being a ‘sickle cell’ complaint.

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Guidelines for the Day of Prayer #SickleCell50

    Guidelines for the Day of Prayer #SickleCell50

Here are the Prayer & Meditation Guidelines for the first ever 50 Hour International Day of Prayer for Sickle Cell Disease #SickleCell50

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April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

    April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

It’s been a long time coming, but here is our first international challenge that focuses how we can change the world—together.

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First Quarter Update from SCW, Inc.

    First Quarter Update from SCW, Inc.

Remember at the beginning of the year when Lakiea and I promised that this year was going to be EPIC

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Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

    Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave

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12 Things You Didn’t Know about Sickle Cell Warriors, Inc.

    12 Things You Didn’t Know about Sickle Cell Warriors, Inc.

Ever wanted to learn more about what goes on behind the scenes at Sickle Cell Warriors, Inc? Well here is a short overview to give you further insights.

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Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation

    Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation

This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the

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Tell the FDA

    Tell the FDA

The FDA meeting is coming up on February 7, 2014 in Silver Springs, MD. Sickle cell advocates, patients, families, and

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Why is the FDA Meeting on Sickle Cell Important?

    Why is the FDA Meeting on Sickle Cell Important?

I just turned in my answers to the FDA questions. A member of the SCW Facebook page said this, “What is the big deal with the FDA meeting, and why

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Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

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