Posts Tagged ‘Living with Sickle Cell’
Sickle Cell Disease Therapeutics Conference
Annual Sickle Cell Disease Therapeutics Conference September 13, 2018 GBT will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at the Park Central Hotel in New York City on September 13, 2018. This annual meeting brings together healthcare professionals, patients, community based organizations and advocates, investors, policy makers and industry representatives. They will…
Read MoreS.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018
S S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act. Then…
Read More5th Annual Sickle Cell Disease Patient & Family Educational Symposium
SCW INVITES YOU! The Patients, Caregivers and CBOs of the SC Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee! www.sicklecellconvention.com ABOUT THE SYMPOSIUM Most importantly, the SCD Patient & Family Educational Symposium (known throughout the SC community as the Warrior…
Read MoreGenetic Testing for Families
Genetic Testing for Families Affected by Genetic Recessive Disorders DNACheckup is a fairly new non-profit organization. It is geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. First, patients can order the tests online. Tests ship directly to the person who orders them. We work with the lab…
Read MoreSpecial Pricing on Books for World Sickle Cell Day
Special Pricing on Books for World Sickle Cell Day!
Read MoreFree and Almost Free Ebooks by April Farrell-Hasty
If you have an e-reader or an iPad or tablet, then you want to get some free ebooks! When I don’t feel well, sometimes all I do is read or study. I have always loved to read, since I was a child. Almost from the beginning, I have had an e-reader. I recently underwent surgery…
Read MoreRainy Lake Medical Center, International Falls, MN – Negative Review
Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle…
Read MoreAvascular Necrosis, Hip Replacements and Sickle Cell
What to do with AVN when you are young? See the message below! One and a half years ago I had a hip replacement and I am young (in my early 20s). I had AVN in my left hip which progressively got worse over the course of 8 years to the point where I could…
Read MoreHappiness: The Key to Sickle Cell
The Key to Happiness November 11, 2017 The Key to Happiness Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy. This past year has…
Read MoreNew Year, Healthier New You!
If your new year’s resolution is to improve your lifestyle, health, and body, here are a few tips to get you headed in the right direction.
Read More