Living with Sickle Cell

Sickle Cell Disease Therapeutics Conference

Annual Sickle Cell Disease Therapeutics Conference September 13, 2018 GBT will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at the Park Central Hotel in New York City on September 13, 2018.  This annual meeting brings together healthcare professionals, patients, community based organizations and advocates, investors, policy makers and industry representatives. They will

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S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act. Then

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5th Annual Sickle Cell Disease Patient & Family Educational Symposium

SCW INVITES YOU! The Patients, Caregivers and CBOs of the SC Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee!  www.sicklecellconvention.com ABOUT THE SYMPOSIUM Most importantly, the SCD Patient & Family Educational Symposium (known throughout the SC community as the Warrior

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Genetic Testing for Families

Genetic Testing for Families Affected by Genetic Recessive Disorders DNACheckup is a fairly new non-profit organization. It is geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. First, patients can order the tests online. Tests ship directly to the person who orders them. We work with the lab

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Rainy Lake Medical Center, International Falls, MN – Negative Review

Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle

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