Gave a talk at 6TH ANNUAL LEADERSHIP SUMMIT & GENERAL ASSEMBLY OF PATIENTS, CAREGIVERS AND CBOs on Networking Event – CBO Roundup . Thanks for the great turnout! #SickleCellSummit #SickleCellSummit2022 #LeadershipSummit2022 #SickleCellConsortium2022 – via #Whova event app
6TH ANNUAL LEADERSHIP SUMMIT & GENERAL ASSEMBLY OF PATIENTS, CAREGIVERS AND CBOs Read More »
BECOME A CARISMA HEALTH COACH! What is CaRISMA? CaRISMA is a program for adults with sickle cell disease (SCD) that experience daily pain. The goal of the program is to identify treatments that do not rely only on opioids/narcotics or other medications. Participants learn about SCD or cognitive behavioral therapy (CBT) via short interactive lessons
How can I help the SCD Community? Read More »
All the variety, all the charm, all the beauty of life are made up of light and shade. ~Leo Tolstoy
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The 15TH Annual Sickle Cell Disease Research & Educational Symposium & 44TH National Sickle Cell Disease Scientific Meeting May 27 – 30, 2021 Register HERE. Find the full schedule by clicking HERE.
15th Annual SCD Research & Education Symposium Read More »
Be a part of a digital memorial booklet. Warriors, we have had our hearts broken. We have lost many amazing warrior friends, families, and brothers and sisters-in-blood. We wept, we suffered, we mourned, but we are not defeated. Still we rise. Join us and the entire sickle cell warrior family as we celebrate and honor
Digital Memorial Booklet Read More »
Micromattie.com launched a SC blog focused on recent developments and best practices in healthcare for Sickle Cell patients. Check it out! You will find lots of information on the health care industry. There are many blogs about sickle cell. Including topics on emergency care, health challenges, and perspectives from people living with sickle cell disease.
Don’t Miss this SC Blog Read More »
Micromattie.com is launching a blog focused on recent developments and best practices in healthcare for Sickle Cell patients. Check it out!
A New SC Blog – Check it out! Read More »
Join us on August 10, 2019 as the ASH Research Collaborative (ASH RC) with CISCRP, the organization’s community engagement partner, conducts the ASH RC Sickle Cell Disease Clinical Trials Network (CTN) Community Engagement Workshop in Oakland, CA! Why? To be a part of a new plan to create treatments that are important to the sickle
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PAULO ANDRÉ CHENSO is a doctor and professor in London. He created a “MANUAL FOR LIFE”. IT’S WORTH A READ AND TO PUT IN PRACTICE. IN THE HEALTH: 01. Drink a lot of water. 02. Eat more what is born in trees and plants. 03. Live with the 3 E’s Energy. Enthusiasm and Empathy 04.
Manual For Life by Paulo Andre Chenso Read More »
Hello warriors! We have just over a week until February 28th, which is Rare Disease Day! In the US, a rare disease is defined as one that affects a minor population of less than 200,000 people. Sickle cell disease falls under the collective umbrella of Rare Diseases, so its another great opportunity to spread the
Rare Disease Day Countdown! Read More »
