New survey finds that treatment in the emergency room for patients with sickle cell disease is not ideal. This is a longstanding issue, but warriors now demand justice. It will be addressed by #BlackHealthMatters initiative
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A Virtual Symposium Hosted by the HHS Office of Minority Health Advancing the Response to Covid-19 September 17, 2020 | 12:00 PM to 6:00 PM ET The Response to Covid-19 meeting features several things. Firstly, promising practices, programs, and strategies for combatting the pandemic in order to achieve health equity in communities of color. In
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A high-level summary of the efforts of Sickle Cell Warriors during the COVID pandemic and shutdown.
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Blueprint for Action – Report Release Webinar Addressing Sickle Cell Disease through a Strategic Plan How are we addressing sickle cell disease? On September 10, 2020, from 2:00 PM to 3:00 PM ET, join the National Academies of Sciences, Engineering, and Medicine for a webinar. They are releasing a new report on SCD in the
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Register here for the new Mental Health Initiative, a free benefit provided by the Sickle Cell Warriors, Inc., community. The program details are below. This program is for warriors, by warriors, to warriors and funded with donations from the SCW community.
Mental Health Initiative for Sickle Cell Warriors, Inc. Read More »
Global Genes LIVE! Get ready for an (un)Summit! Find a variety of engaging and educational online events, meet-ups, workshops and performances. (un)Summit: September 15-25, 2020 A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community and allies with ways to connect and engage with each other through interactive activities
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Ready to join us for the sickle cell disease Livestream? Join here for the sickle cell conference disease therapeutics conference sickle cell disease pre register for livestream here at sickle cell warriors
Annual SCD Therapeutics Conference Read More »
To best serve you during this trying year, Sickle Cell Warriors, Inc. has developed a short study. Data received will be used to guide program development and education. This falls under our mission objectives of Research, Advocacy & Education.
COVID Sickle Cell Warriors Impact Study Read More »
Increasing Appointment Attendance: A Vital Opportunity to Improve Health Outcomes for Those Living with Sickle Cell Diseases August 10, 2020, 3:30 – 4:30Â p.m. ET To make health outcomes better, national rules for routine follow-up appointment every six months. More often for patients on specific drugs or having probelms. Yet, a 2019 national study showed that
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Study Finds Emergency Care is Not Ideal Most people with sickle cell disease (SCD) in the U.S. are happy with their PCPs, but less so with emergency care given at a hospital to manage severe pain, according to a survey of more than 400 teenage and adult patients. How a person expects to be treated
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