10th Annual Sickle Cell Disease Therapeutics Conference September 15, 2021 9 am – 4 pm EST Visit the SCW Facebook page to join the GBT Livestream Sickle Cell Warriors, Inc. (SCW) and (Global Blood Therapeutics) GBT partner to host the annual Livestream of the 2021 Sickle Cell Disease Therapeutics Conference (SCDTC). Firstly, learn about the […]
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Learn more about the Hibiscus Study Clinical trials are critical to finding new or improved treatments for diseases. By participating in a clinical trial for sickle cell disease (SCD), you could help researchers better understand the disease or find new treatments that can be given to SCD patients in the future. About the Hibiscus Study™
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Newborn Screening Advocacy Succeeds in Georgia Earlier this month, Georgia Governor Brian Kemp signed HB 567 [ https://www.legis.ga.gov/legislation/59896 ] into law, which will require the state to consider new federal newborn screening (NBS) recommendations within one year, implement them within two and a half years, and provide appropriate funding for the NBS program. ASGCT supported the bill
ASGCT Advocacy Update Read More »
Vertex and CRISPR Therapeutics Present New Data in 22 Patients With Greater Than 3 Months Follow-Up Post-Treatment With Investigational CRISPR/Cas9 Gene-Editing Therapy, CTX001™ at European Hematology Association Annual Meeting – Beta thalassemia: All 15 patients were transfusion independent after CTX001 infusion – – Sickle cell disease: All seven patients were free of vaso-occlusive crises after
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Passing on Sickle Cell to your Children Warrior parents, can you relate to feeling like this? How do you cope? What helps you get through these feelings about passing on sickle cell? Jourdan Dunn feels as if she passed sickle cell disease on to her son, Riley Dunn. The model-turned-actress recently told The Sunday Times magazine about
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Happiness isn’t always easy to catch and hold onto. Yes, some relationships can provide deep joy, and material possessions might offer a short-lived thrill, but these sources of happiness are somewhat out of your control. To nurture and sustain feelings of happiness, develop routines you can rely on no matter what else is going on in
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New survey finds that treatment in the emergency room for patients with sickle cell disease is not ideal. This is a longstanding issue, but warriors now demand justice. It will be addressed by #BlackHealthMatters initiative
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A high-level summary of the efforts of Sickle Cell Warriors during the COVID pandemic and shutdown.
Updated Pandemic Response Read More »
Group Mental Health Sessions : Spots Available Hello Warriors, There are still a few spots available for our brand new mental health initiative: group sessions! These mental health sessions are great for getting yourself back in the positive swing of life. The licensed psychotherapist has graciously allowed us the courtesy of having a few more members
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Learn more about the sickle cell scholarship sickle cell disease. This education scholarship is for sickle cell warriors scholarship whoo are pursuing higher education. Will help with tuition for school.
Tuition Scholarship: First Annual Read More »
