Wishing you all the blessings and joy this happy new year in 2016! May you find the strength to live your very best life. and keep on fighting until there is a universal cure or multimodal treatment for us all. Love, hugs, and stay blessed. The year 2016 is set to be a great year! […]
Happy New Year in 2016! Read More »
The most important day of my life is the day my parents explained the essence of the pain I have gone through majority of my life. Around the age of seven, I was slowly being informed about what made me different from the rest. The Beginning The very beginning of any child’s existence would have
Isata Lakoh – The Most Important Day Read More »
From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. In addition, please use your own judgement, and only proceed if you feel comfortable doing so.
Research Study Request: Chronic Pain in Sickle Cell Disease Read More »
This excellent action network resource dedicates itself to sickle cell disease. For the last few months, Gary Gibson, President of the Martin Center Sickle Cell Initiative hosted this amazing show. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community, hear more about management of SCD,
Action Network at 1pm PST Tuesdays Read More »
To all the Warrior Moms, Dads, Lovers, Sisters, Brothers, Husbands, Wives, Children & Caregivers. This beautiful ode is for you. Thank you for being our angels. You are Beautiful Have you seen the angel in your world. She is a beauty to behold! Her wings were brilliant but fragile. when she tries to flaps, the
Beautiful Ode to the Caregiver Read More »
This recipe has all the earmarks of being perfect for those with sickle cell; great root vegetables, easy to prepare, and rich in thiocyanate
Roasted Beets and Sweets Read More »
One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, then what the pain feels like, going through a VOC, and the stigma that we often face living with an invisible illness. Above
Heather on Dr. Phil Show Read More »
Picky Eaters As most parents know, many children can be picky eaters. Getting kids to eat their fruits and vegetables has challenged parents for many decades. Especially for those youngsters diagnosed with SCD (Sickle Cell Disease), it is often associated with low calcium intake, vitamin D deficiency and a poor appetite, which can lead to
Picky Eaters: Getting A SC Child to Eat Healthy Read More »
Breaking news from all around the world in #sicklecell disease. Stem Cell Transplant in sickle cell news Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. Therefore, there is a 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great
Sickle Cell News Sept 2015 Edition Read More »
With sickle cell, carrots and potatoes are supposed to be our staples. Here is a recipe that uses them all flawlessly combined with some protein thrown in.
Stew: Mediterranean Carrot and Sweet Potato Read More »
