A new study shows that the annual cost of medical care in the US forpeople who suffer from sickle cell disease exceeds $1.1 billion. Check out the full article HERE. They report that the average total cost of care per month per patient was $1,946, with substantial variation across age groups. Total costs per patient-month
Sickle Cell costs $$$ Read More »
Hello! What’s up everyone? I’m still here, chilling in Portland, enjoying wonderfully beautiful summer days. For the 4th, of course I hit up the waterfront and did the fireworks thing…it wasn’t as spectacular as last year (dratted economic crises!), but it was decent. When I was leaving my house that hot summer afternoon, my friend
Hello everyone! How are you enjoying the summer? I’m doing great, having all kinds of fun in beautiful Portland. Summer is the only time that it’s beautiful and not raining in Portland, so I might as well savor it right? I’ve started my exercise regimen again and this time I’m super dedicated. I’m doing a
Happy Juneteenth everyone! I’m up bright and early because Norio is in charge of organizing the music for the Juneteenth festivities here in Portland. On top of that, he’s also performing! It’s going to be a fun, interesting day… Hope it doesn’t rain!
The United Nations and the World Health Organization has declared June 19th World Sickle Cell Awareness Day!! We have our own day y’all. Congratulations! Right now there is a huge festival in New York (I will be posting info in case you can make it), Cayman Islands, the ATL and all over the world. Please
Global Sickle Cell Awareness Day Read More »
World Sickle Cell Day Festival is June 19!!!—that’s tomorrow! Date: Friday, June 19th, 2009 Time: 10:00AM to 6:00PM Place: Dag Hammarskjold Plaza 47th Street (Between 1st & 2nd Ave) New York, NY 10017 Event: “World Sickle Cell Day” with special guest Ruben Studdard (American Idol winner) and many others The Queens Sickle Cell Advocacy Network,
World Sickle Cell Fest in NY! Read More »
Last night was my last shift at my now old hospital. I was working there for 6 months, and even though the patients were beyond crazy, and it was like working in the trenches, I really enjoyed my contract and my ‘work-cation’ in Santa Barbara. Tomorrow morning, I’m loading up the car, and driving 16+
This poem by Jasmine Bailey gave me goosebumps…it’s like she looked into my whole experience, identified it and put it into words. I think every sickle cell warrior can totally relate. Check it.
SCD Poet on Brave New voices Read More »
Okay, let’s talk Alternative therapies. I had a list HERE on recommended alternative herbal remedies for sickle cell. Well almost a year has passed by since then, and I’ve been told and have remembered a few more. Carao fruit: One of my Brazilian readers mentioned this. Apparently, she has been giving carao to her daughter
Alternative Therapies Read More »
Hello darlings, I’m back in action! Oh yeah baby!!!:) Seriously though, being sick totally sucks. I don’t want to have another crises for a loooooong, looooooooong time. I’m not even shooting for a year anymore, I just wanna be 100% crises free. So my visit to the ED totally sucked as usual. I really wish
And the War Goes On… Read More »
