Where do I begin? I’m living in Santa Barbara, the site where the Jesusita fires were burning fiercely a mere 2 days ago. Thankfully the fires have now been contained. It started last Monday, and by Thursday, the fires were raging out the control, the city evacuated. Heads up, if you ever have sickle cell
There seems to be some hope on the horizon for Nicosan. I can’t go into details yet, but I will once the changes have all been confirmed. I knew that you guys had intercessory prayer mojo backing us up! What warrior doesn’t?
Hello everyone, I’ve been digress in mentioning a few snags that have hit Nicosan. I’ve gotten several emails over the past few weeks that have alarmed me as well as sent me for more information. As many of you might know, Xechem USA filed for bankruptcy last year. Currently there is pending litigation about the
Hello darlings, In the interest of full disclosure, I must state that I had pain this week. I actually had to call off of work on April 1st. The pains started as they normally did, twinges here and there, L1s, nothing major, and I ignored them, thinking it was a fluke and would just go
April Fools Joke..not cool Read More »
My sister sent this to me from a friend of a friend. Guess Sickle Cell is in the eye of our new president after all! Hi All, In our continuing efforts to spread awareness about Sickle Cell Disease…Gabriel and I got to meet with Pres. Obama on this past Tuesday! Can you say WHAT A
Sickle Cell & President Obama Read More »
Hey everyone. I just got this link on some research conducted at John Hopkins University related to sickle cell. The article talks about Chemotherapy as the new adjunct therapy in BMT patients…feel free to go ahead and read it. According to Sophie Lanzkron, director of the Sickle Cell Center for Adults at Johns Hopkins University,
Bone Marrow Transplant + Chemo is the new Cure Read More »
This letter just brought it home for me…all the stress that I’ve been going through getting Nicosan to my dear users in the US. It’s been difficult maintaining with all the business and economic setbacks both here and in Nigeria, but this note from a Nicosan user just reminded me why I love what I
This is not my research, therefore I do not have additional information about this project. It is being conducted by Kimberly Grace, a PhD student at Alliant International University. For questions and contact information, please click the link to the survey. For anyone over 18 with sickle cell, please consider participating in this project. It
Scars that bindTears that fasten me to uOur pain unites usSo be true to this emotionlive without shame your woundsCarry your head high as the tears flow.Let the tears fall and express your painwithout reservation, without regretbecause the more we share our painthe closer we become.Pain shared is real, true, pureI can’t fake pain, so
Hey everyone, I’m seriously trying to set up a study dealing with Nicosan. The question in my last post has me thinking that there are some unanswered questions. The think most of the skepticism does come from the fact that it’s an African herbal remedy versus a Westernized one. There isn’t enough documentation and evidenced
Nicosan Research Study Read More »
