NIH stops trial of drug for sickle cell patients July 28, 2009 | 10:46 am The National Institutes of Health has halted a clinical trial using sildenafil to treat pulmonary hypertension in sickle cell patients after preliminary results showed that the drug was actually increasing sickle crises rather than reducing them. Sildenafil, sold by Pfizer
PPH Sickle Cell Drug Trial Stopped Read More »
So to all my darling warriors that are fretting about their first long trip in a plane…here a a few tips to keep in mind. Layovers: Do you have a layover? If not, make sure that you stretch your legs periodically to prevent leg cramps. When booking, I always recommend at least one layover for
Tips for Flying with Sickle Cell Read More »
I know that I shouldn’t let a few empty barrels ruin the party, but some of the people that are ordering Nicosan are driving me bonkers. All I wanted was to help people, not get harassed on the regular, get scammed, or get my Paypal account in the negative because someone chose to reverse their
A friend on the Ning Sickle Cell forum is working with doctors at Johns Hopkins to develop training for medical students on sickle cell treatment & care. They want to know what issues we’re having with health care treatment. This is our chance to get on the soapbox and let our voices be heard. So
Informational Release from Xechem Nigeria. This is old, but I just came across it so I figured it would help some answer all their questions. NICOSAN™ is a non-toxic, Phyto-pharmaceutical, product for the treatment of Sickle Cell Disease (SCD). NicosanTM is obtained from the mixture of four Nigerian plant materials e.g. Piper guineese (Seeds), Pterocarpus
Information about Nicosan Read More »
Okay, for starters I’ve learned the hard way that it’s always good to tell your job that you have sickle cell BEFORE you end up in the hospital for a week. I used to work as a personal assistant, and it was a great job that used my organizational capabilities to the max! I fell
Telling Your Job You Have Sickle Cell Read More »
On the Sickle cell Ning forum, there is a great discussion about the crazy things that Sickle Cell Warriors say while they are on narcotics. Personally that hasn’t happened to me in a while, but I do remember the days of horrendous hallucinations and crazy conversations. Whoever was at my bedside at the moment bore
The Crazy Things I Say with Narcotics Read More »
As a transcontinental transplant, I experienced alot of dramatic changes in how I was treated as a sickle cell patient in Nigeria vs my treatment in America. Those of you who have read the archives know that although I was born in Nigeria, I only lived there from birth to 4 years old, and then
Being Sick in Nigeria vs Sick in America Read More »
Nicosan is referenced on the Mayo Clinic website. We’re moving on up! Check it on the end here
Mayo Clinic on Nicosan Read More »
There is a great discussion over at the Ning Sickle cell board over coping when you are in the hospital in pain and doctors don’t believe your pain and ask you what your doses of pain meds are, and when you tell them, they respond “Oh that’s too high, that can’t be right, I’m only
In the Hospital in PainCop Read More »
