Hey everyone, First of all I would like to say welcome to all the new members!! The community has grown a lot by leaps and bounds. I’m really happy that you have found us in our little corner! As of today we are 25,600+ members strong. SCW is officially the largest patient-run sickle cell community
Welcome Letter from the Editor Read More »
Background Most important is June 19th is officially designated as World Sickle Cell Awareness Day. Therefore this 2020, as a part of the SiNERGe shine the light on sickle cell campaign we are asking the community to “mask up” for sickle cell. This is because individuals living with sickle cell disease are more susceptible to
World Sickle Cell Day 2020 – Call to Action Read More »
Knowledge and Confidence to Tackle SCD Sickle Cell Disease is well known for the pain that it causes patients, parents, and caregivers. What isn’t widely researched is the emotional stress that families go through. Emotional stress is due to the unpredictable episodes of pain, hospitalizations, risk of death, and more. Treatment options are few, and
Parents and Caregivers SC Handbook Read More »
Juicing for Sickle Cell: Carrot Apple Smoothie Hello everyone it’s Tosin, the sickle cell warrior. And I am going to give you one of the greatest secrets in managing your sickle cell. This is a secret I am willing to share with you because it has helped me tremendously over the last 6 months. It’s
Carrot Apple Smoothie Read More »
Doctors and nurses, even our friends and family often see us as “the sickler”
Hard Global Launch September 2019
. We will have a story featured every day (or several features every week) on the website and on all our social media.
#SCWLiveBig
The #ShowYourRare campaign was launched in 2018. The campaign has inspired the Rare Disease Day 2019 poster and videos. Rare diseases affect an estimated 300 million people around the world. There are over 6000 different diseases. So rare’s not so rare after all. Support the rare disease community by showing your rare. With your help, we can raise awareness
Hello warriors! We have just over a week until February 28th, which is Rare Disease Day! In the US, a rare disease is defined as one that affects a minor population of less than 200,000 people. Sickle cell disease falls under the collective umbrella of Rare Diseases, so its another great opportunity to spread the
Rare Disease Day Countdown! Read More »
Water is a very powerful thing. Cultures as old as time have worshiped it. It flows throughout all the lands, connecting the entire world, teeming with life, feeding the entire population of living things. Our bodies are made up of 80% water. Planet Earth has more than 70% made up of water. Water is life.
[vc_row][vc_column][vc_column_text custom_title=”USING THE INTERNET TO FIND HEALTH INFO” header_color=”#dd3333″] The pros and cons of finding information on the Internet The Internet (Web) can be a good source of sickle cell disease information. Within a few minutes, you can learn about the latest sickle cell disease research, find a clinical trial or confirm a hematologist is
Using the Internet to find Health Info Read More »
Sickle Cell Warriors, Inc. is a non-profit charitable organization dedicated to elevating education, empowerment, advocacy, and awareness about sickle cell disease. Our mission is to inspire those affected by sickle cell. As of this minute, you are no longer alone. You have us—and we have you. Welcome to the Warrior family. WHO WE ARE The
