Ever wanted to be in a sickle cell documentary? Well if you live in or around NY, this project may be something to look into.
The more I do this, the more I realize that we are all so very, very, connected. This video really made my day so I’m sharing it with everyone.
The greatest tool that we have in the battle against sickle cell is our voice. Silence kills! If you think something is wrong, speak up! Use your voice to save a life!
Have you ever taken a shower in the AM and had pain almost immediately afterwards?
You are in the hospital, and after many failed attempts, your pain is still out of control. What do you do?
For educators, parents and children with sickle cell disease, this video is a good point of education on the challenges faced by children and adults with sickle cell disease.
Sometimes, you don’t have pain, but really don’t have the energy to go out and hit the town. Your blood counts are low. You’re tired. It’s not a crime.
Get the gist of Tosin’s airplane trip to Nigeria here.
When life gives you lemons, make lemonade. Share your hallucination story and let’s all have a laugh together.
Heather Davis and Dr. Jennifer Stojan, discuss care of a sickle cell patient from both points of view…
How do you deal when a friend or family member is going through a crises? Check the video to find out more.
Meet Elise: a beautiful, eloquent SCD warrior bravely sharing her story of the struggles of dealing with sickle cell.
video on some of the most common intravenous accesses sickle cell patients have
Tosin explains why the word ‘sickler’ is an anathema to her. Words have power. Do not allow a word to limit your dreams, aspirations and potential.
Check out this poem by Jasmine Bailey. Jasmine was featured as a poet on Russell Simmons’ Brave New Voices, a show that was on HBO a couple of years ago.