Flight Details

The good news: No crisis in the middle of my flight! YAY! The bad news…I was sick for a few days, but all is well now. Get the gist of Tosin’s airplane trip to Nigeria here.

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Advice to Med Professionals: LISTEN!!

I can’t stress this enough: many people fail to realize how painful sickle cell is. Doctors, nurses etc. please take note… Heather Davis, a sickle cell patient, talks about the stigma from her point of view. Dr Stojan discusses how sickle cell challenges the health care system…and the stereotypes that sickle cell patients face.  

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Supporting Someone Through a Sickle Cell Crises

To the caregivers, family, friends and spouses of sickle cell warriors, many wonder how to cope and deal when their loved one is in pain. People deal with it differently: some shut down, some stare, some ignore you writhing in agony. Tosin Coker has created a wonderful video blog on a sickle cell warriors’ perspective…

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Meet Elise

Meet Elise: a beautiful, eloquent SCD warrior bravely sharing her story of the struggles of dealing with sickle cell.

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Do Not Call me a Sickler!!!

Tosin explains why the word ‘sickler’ is an anathema to her. Words have power. Do not allow a word to limit your dreams, aspirations and potential.

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SCD Poet on Brave New voices

This poem by Jasmine Bailey gave me goosebumps…it’s like she looked into my whole experience, identified it and put it into words. I think every sickle cell warrior can totally relate. Check it.

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